Is anyone else on here facing cancer alone ?
I feel it's a rollercoaster ride from one week to the next.
I would love to hear from others who have very little support and how they cope.
I feel like every day is a challenge to stay positive
Thanks
Its great to hear you are staying active as I do agree it makes a difference to our mindset. Accepting the diagnosis is the hardest part. I was only diagnosed in February and my doctor keeps saying well its early days in dealing with feelings and emotions. I never knew how difficult it could be to live with cancer until now.
I hope you continue on your road to recovery, despite uncertainty. Decisions are so much harder when you are alone
x
Hi Jane, nice to hear from you. Yes I only realised today why you hadn't written. I was worried about you after things we wrote about before.
I'm doing okish, trying to keep busier than I was. Still battling the diarrhoea and other side-effects but it's not been too bad thankfully. Next time it gets bad, no matter what my Oncologist says, I'll take a break from the meds. I'll have no choice if I want some sort of life.
Hope things with your move are going better than they were.
Take care of yourself, love Geoff. x
Hi Pippa
In an attempt to reassure you, I've found (as have some others posting on here) that it DOES get easier to accept that cancer has become part of your life, and it is possible to live with it. It took me about 9 months, but I was told at the outset that mine is incurable but treatable....and I had no symptoms, felt perfectly well.
Everyone reacts differently to their diagnosis, obviously. There is no 'right' way or 'wrong' way to react. The initial panic and anger tend to subside after a while though.
It's now 3 years since I was diagnosed. I'm still feeling well, and able to enjoy life. I feel very fortunate, as I know others have a much harder time than me. My only advice is to believe in yourself....you are stronger than you think!
best wishes
Kate
Hi I know how you feel my husband died during lockdown of lung cancer and it was hard as we did not get the support we should have. I have 3 sons but they don’t really understand and no matter how old they are you always try and protect them. I had problems with my medical centre they kept saying in was acid reflux all I got was phone calls and more pills they would not listen. I am now waiting for results of p.e.t scan and biopsy get to see consultant on 29th you try to be positive but your scared to get your hopes up.
Anabel
Hi Kate
Thank you for your kind words and your honest feelings about your diagnosis. I am so glad you are still feeling well despite the diagnosis.
I am trying to remain positive and get working on my bucket list which I failed to do the last 2 decades lol.
I guess we just have to deal with it in our own way, that feels right to us. I think my anger and upset stems from the way I have been treated from medical professionals in the last year.
Being dismissed and mis diagnosed has been really hard to accept.
xxx
So sorry to hear about your situation Anabel.
Its hard to wait around for tests, results and decisions on treatment.
Keep being positive although I know its difficult when you keep worrying. I use creative projects as distractions, which helps a little
x
Hi Pippa thanks for getting back to me.At the moment all I seem to do is housework. I do have quiet a few hobbies but as I am not getting a lot of sleep at the moment it’s hard to concentrate.
Anabell
Hi Pippa
I've had some 'run ins' with some medical people too, along the way, and I agree that it is really difficult to tolerate, especially as these are the same people we have to put our trust in, and we don't often have a choice as to who we see.
At times, I've used the support line here to talk through difficulties. I've found it really helpful.
I hope you have a smoother path from now on!
Sending hugs
Kate
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