Hi there lovely people. Im Lucy and this is my first post, maybe this is the wrong place to post this but I am going out of my mind!
I am seeing the consultant at the sarcoma unit QE Birmingham on Monday and I can’t bear the thoughts going through my head.
5 years ago I was in hospital for something else and a tumor was found next to my right kidney. It was a horrid few weeks waiting for them to work out what it was. Luckily it was a benign ganglioneuroma. It couldn’t be removed without my kidney being sacrificed and it didn’t cause me any trouble so they just did regular MRIs to keep an eye on it.
well recently I found a hard lump near my lower left spine. It’s solid and not movable at all. I’ve also had neck pain, shooting pains in my legs and arms, bladder trouble and bowe and other symptoms It aches at night and keeps me up and I’ve lost 5% of my weight in 3 weeks I’m going straight to them so not had any imaging done yet but I am very concerned.
how can I stop my head going crazy. One minute I think it will be nothing the next I panic and have a sense of dread. I think because it’s causing so much trouble and it’s a hard immovable lump it’s scaring me.
I know nobody can make me feel better but I’d rather be informed and know what im facing here.
just a rant really to get it off my chest!
Well I can find humour in pretty much everything.
As for love. It’s never too late.
My friend who passed away form breast cancer 12 years ago was dating til the bitter end!!
Well I hope the end of July brings you some positive news Waiting is just awful it’s impossible to switch your mind off
keep smiling 
️
BeefyMoo. I haven’t been on for a while. Still waiting for results… it’s a nightmare. Did you get your results? Hope you’re ok
Oh bless you.. it’s a shame they aren’t more your age.
and I’ve posted an update in Cancer Chat as it’s all a bit complicated. I was meant to be an urgent referral in June and here I am still waiting. It’s been a catalogue of errors. I’ve been off work since then so I’m dipping into my savings (which aren’t much) just to cover bills. I’m so tired. in pain and can’t be far from a toilet.
But I’m very glad to hear that your news sounds positive, just hope the results of the recent one is also good 
Lucy ️
They think June is urgent? That was June 2025, right?! 
I'm sorry you're suffering so much Lucy, especially the pain. I've gone through all those things before, but luckily for me the only issue I have now is not being able to be far from a loo. I go through it in my mind a lot, what might happen if I'm out and can't get to a toilet. Even if I can, it can be too late by then. It stops me going out but lately I have taken the risk more, and I've changed my meds and how I eat. It all helps.
Geoff.
Thank you!! MDT tomorrow so hopefully ill know what’s going on soon
