Just need some positive vibes and support

Lucybluebell,

Always good to rant.  Do more of it if you need to.

Hi lucy,

What you are feeling is perfectly normal, its a rollercoaster.  

I had a sarcoma in my leg in 2014.  I tried not to borrow trouble by looking at what might happen and what might not. I focused on making sure I knew what I wanted to know at appointments and had someone with me who could make sure they heard what was said.  I concentrated on doing everything I could to get prepared for treatment.  I thought through how I wanted to be with everyone, family, friends, colleagues, acquaintances and made plans to do that and executed the plans.  

Its seriously scary I know and I offer what I have not as advice but more so you can consider how you try to behave.  I am a serious believer in you can change how you feel by changing your behaviour. Its the basis for cognitive behavioural therapy so does work, but its not a quick fix. When you notice you are starting to panic notice your what your bodies doing and that can help to bring you back to logical rather than emotional thinking.  Emotional thinking will cause you to believe the worst is inevitable, logic will help you to get that

All the best for Monday, hopefully the news is good and it may be nowhere as bad as you are imagining when you panic.

And as mousse on the loose says rant if you need to! 

Thank you. 
you speak from experience and I appreciate your words. 
Here’s to positive energy

Hi Lucy,

I saw the title of your thread and had to write, as I need exactly the same - Positive vibes and support. I have very few people in my life so not many people to talk to. Some of those who you'd think would support me most have done the opposite and made things even worse for me. I'm always being told of support options but they never seem appropriate for a weirdo like me. Some I've tried, but others just aren't going to help me. I just want some friends to talk to, or meet with and have a rant at. I don't want therapists or specialists to tell me how wonderful I am or how everything will be ok.

I won't get into details about my own cancer here. I just wanted to reach out and say hi, and to let you know you're not alone, and many of us here understand all you're going through.

Say hi any time.
Geoff.

Aww mate I’m sorry you feel that way. Well it seems you’ve come up the right place!! 
there is a whole community here to support you. 
I am lucky as I do have family and friends to support me but I don’t even know if there’s anything wrong with me yet. 
I still haven’t had an mri. The hospital messed up and booked me in for the wrong one. The lovely sarcoma nurses at Birmingham are trying to sort it out because it’s over 4 weeks I’ve been fobbed off and dismissed. 
it’s good to have them.  Even though it’s been 2 years since I’ve been under their care ( I have a benign ganglioneuroma ( Tina Tumour) on my kidney that they didn’t want to remove because it didn’t bother me and it was in an awkward place and I would have had to lose my kidney if they took it out. So I’ve been having mris for 3 years and then discharged 2 years ago. 
my sacral lump has grown in the past week and it looks swollen. It also has a couple of moveable little mates appeared. They aren’t the same as Donald ( I’ve named the sacral one Donald Lump) quite appropriate really because it too isn’t welcome and causing me grief

I’m waiting for a call back from Birmingham today hopefully they’ll sort the imaging and Ill gret some answers answers and deal with this awful pain. I haven’t slept at night for 2 weeks as it hurts much more at night. 
And likewise. Say hi and I’ll reply as soon as I can 

Lucy 

Nice to hear back from you Lucy. That's not good about the hospital messing up your MRI. I've been lucky, if that's the right word for having cancer, that my scans and various treatment have always been given a priority. I've had scans before on the same day as my Oncologist wanted me to have one. I even had radiotherapy started on a tumour in my neck the same day as it was found. I hope they sort out your MRI very soon and let's hope there's nothing to worry about.

In my case, my initial tumour was in my kidney and they just took the whole thing out, along with a couple of other bits too. It was supposed to be keyhole surgery but they had trouble getting it out so had to do the full procedure, leaving a massive scar. I love that you named that lump of yours Donald! It's exactly the sort of thing I would do, but somehow I never named my tumour before they removed it.

I hope your pain goes away soon. For a few weeks I had awful pain which was eventually dealt with after taking lots of morphine and having radiotherapy for a week.

Good luck getting that scan sorted.
Geoff.

Thank you. 
I’ve just read you bio Geoff and my goodness you’ve been through the mill. Physically and emotionally. 
To be going through all that and have your girlfriend leave you is just awful. That emotional pain feels like a real physical hurt. 
it sounds like you are a strong person through. 
you never know what’s round the corner. 
After a lifetime of awful relationships and pain I met my soul mate at 49! 
that was over 4 years ago .. so it’s never too late to find someone who will love you whatever and also for who you are. 
I wss a single mum to my 4 daughters for 12 years which was a challenge and very lonely at times but they are a true blessing. They are all grown up now and honestly are amazing and Im so proud of them. 
I really hope you are getting your health back and god bless the morphine

Thanks for your kind words Lucy. Yes I've been through a lot and it's hard to stay positive, but physically I am doing a lot better than I was 6 months ago. I'm glad you found your soul mate, even if it wasn't until you were 49. I think I met my soul mate when I was 25 but we were forced to part ways very soon afterwards. That's a very long story.

Take care. 
Geoff.

Plenty of time Geoff. We are in our prime (don’t actually feel it just now!) you never know what’s round the corner and I think you’ve had your quota of bad luck! 

Just had a call back from Birmingham. Got 2 MRIs on 1st Aug. Then will have to wait for them to discuss at MDT. so it’s going to be a wait. I remember last time .. took them ages to work out what it was.  
should know by September

ahh well!  Donald had better behave in the meantime. And as for Tina. Well she can bugger I don’t need her in my life again haha 

One of my problems is that due to cancer, my time is limited. I don't know how long I have but I've been given an idea, and it isn't looking good.

Glad you have your MRI sorted - 2 of them? I've had several of my head and neck before, but both at the same time as part of the same scan. Anyway, I hope you get answers before September! The waiting is one of the hardest parts. I'm currently waiting until 31st July for CT scan results.

You sound really fun and positive, which is a great way to be when scary things are happening to you.  :)