Hi,
I was diagnosed with an aggressive medulloblastoma in 2018. We thought the treatment had been successful and for 7 years scans came back clear.
3 weeks ago I was told it had returned. Good new: its not so aggressive, it's smaller and we have caught it early (yay for the small wins). The radiotherapy killed a lot of my hair on the lower layer, leaving 'triangles' as i call them. My hair has grown back to a sate I've learned to accept.
I work in a school as a TA and I'm worried about teasing if my hair grows back even thinner or the bald spots can't be hidden.. I know wigs are brilliant these days and there is no way of knowing how it is going to grow back, but if anyone else has been through this and has positive stories to share I'd love to hear them.
Likewise, is there any kind of pre-treatment that might save the follicles before it starts? (Unlikely I know)
Thanks for taking the time to read this xx
Hi sugarpuff1979 and a very warm welcome to the Macmillan Community.
Lets look for any group members with first hand experience to pick up on your post.
This is a General Cancer Chet Group but you may want to join our dedicated…….
…….. Support Group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
To connect in with the group please click on the link above then once the group page opens you will see a [Black - Click to Join - Banner] at the bottom of the page, click in this box and this will then confirm that you have joined the group.
You can then introduce yourself to the group by putting up your very own post by clicking [+ Create new post] or [+] in the top right of the group page.
You can copy and paste the text from this post into your new post.
Do get back to me if you need further help navigating the community.
