SR1 Form for PIP

Hi Tillyboo sorry to hear about your concerns……. I have talked with many people on the community and actually know a few folks who were awarded this special rules (enhanced) benefit who are classed as having a terminal (incurable) prognosis….. and they have lived for much longer than the 12 months and one person is now on year three post being put on special rules.

I think you need to have a chat with his Nurse ((hugs))

Ok thank you

TBH I couldnt speak to nurse about this in case she says something I dont want to hear. 

I'll just wait & see if anyone else as this SR1 form x

Information is a balance.

I have been on my journey with 2 rare (8 in a million for the first and 4 in a million for the second) hard to treat (one incurable) types of T-Cell Non Hodgkin’s Lymphomas…… for over 25 years….. first diagnosed in 1999 at 44.

Back in late 2013 when my second type of T-Cell appeared my wife and I were clearly told that the plan that was now in place needs to work as if it did not, I would only have a few years on the clock……. so get your affairs in place.

It definitely focuses the mind being told this but so far so good.

Dear Tillyboo 

The SR1 form is used to confirm someone has a terminal illness. It’s not a prognosis. If the medics don’t complete the form you can’t get the benefit. Better to think of this as the nurse has done you a favour, she almost certainly can’t predict how things will play out. 

Ok thank you

I have also just filled out the special rules form - Well actually I asked someone from St Barnabas to help me. I haven't been given a solid prognosis so I don't know how much time I have left. There are other conditions I've read for getting the enhanced payment (which I've been getting) relating to your mobility. My answers to all mobility questions showed that I was mostly very mobile and didn't need help getting around. I forget what the blurb says exactly but the extended payment is supposed to be for those who can barely walk more than a few metres or need help to move at all. Yet they still gave me the enhanced payment.

So my point is that it could be they aren't very strict about some of the conditions, including any possible prognosis. They don't know my prognosis because nobody knows and I'm still undergoing treatment.

So I'd say not to worry about it, if you can manage not to.

You replied to someone else saying that you're scared to ask for a prognosis because you may not like what you hear. I feel exactly the same, yet I've been stupid enough to ask a few times. I was once told 1 year and I was surprised it was that bad, but he quickly backtracked and said that once I reach 1 year I could aim for 5! So who really knows. I even asked one of the consultants the same question and told him to lie if he had to, as long as I had something positive to tell me to help me not give up on life. He wouldn't say anything though other than it all depends what my scans show.

All the best to you and your Husband.

My husbands oncologist recommended we apply for this. He is Stage 4 bowel cancer with a number of complications.  

Like you we had not received any prognosis and the oncologist was very reassuring and confirmed that when we applied the questions may be very confronting but that did not mean she believed he had less than 12 months to live. However with amount of appointments and visits to the hospital.he has it would help towards the transport costs that were considerable.

Anyway that was last January (2024) and he is still undergoing treatment and we are still trying to manage the cancer which is going ok at the moment.

Another piece of advice oncologist gave was to phone the DWP and apply that way as the date of the call would count as the 1st day of any payments to be made. Even if you haven't got the SR1 form as they will contact the hospital on your behalf to confirm. Whereas if you applied by post it would only be when they received the completed application form.