Late evening and I have just sat down to relax. My husband has been away for a week and for the 1st time since diagnosis I have had to do everything and it's made me realise that I need help. I struggle with my balance - this may be partly due to the fact that just before I was diagnosed I had a bad ear infection which led to a perforated eardrum and total deafness in my right ear.
I was diagnosed with incurable Liver Cancer in August 2023 and started Immunotherapy treatment in September. To date I have had 30 cycles and to look at me you wouldn't know I had problems. My legs seem to have a mind of their own and go their own way at times. They also ache all of the time. I find I cannot get onto the floor without having to roll over. My hair is thin and I've gained a stone in weight , not that I eat a lot. A brilliant hairdresser and an ability to use make up to it's best look and friends will keep telling me how well I look when at times I feel like S***. I have little patience with people and have to bite my lip more than is healthy and basically I'm fed up to the back teeth. although very happily married I've always maintained my free spirit. I've travelled many places alone with my husbands blessing as I've always been able to deal with problems well.
Now I've suddenly realised that the life I loved has gone and instead I'm reliant on other people. New to me and I'm uncomfortable with this in a big way.
This was supposed to be me saying hello and instead I have wittered on about poor old me. Sorry I'll try not to do it again.
Keep well everybody and enjoy each day that you can Jackie
Hi Jackie mrs jg navigating the incurable cancer world can be very challenging as there is no normal….. what was normal has been taken away.
The challenge is to find a way through the negative parts of the journey and find some light in the darkness.
I have been in my incurable journey fir over 25 years now….. I have an 8 in a million rare type of cancer but eventually found a small community of people with the same cancer so interacting with them helps a lot.
On this community we do have our dedicated….
Living with incurable cancer - incurable patients only
…….. support groups. This is a very safe place to chat with others who are navigating the same path that you are on, a place to ask questions or just a place chat about anything that comes to mind ((hugs))
