External bile drain

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Hi

can anyone offer advice how to live with an external bile drain at home? In particular, how to best wear it so it doesn’t get too much in the way of things and the tube doesn’t kink and block? I’ve got a home made bag I carry it around in, big enough for all the tubing and the collection bag, but it would be a lot easier with shorter tubing and smaller collection bag. The hospital nurses said there wasn’t one - has anyone got one?

thanks! 

  • Hi  I have a totally different type of cancer.

    The Community is actually divided into dedicated Cancer Type Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your own post in our dedicated…. 

         Bile duct cancer

    …… support group. This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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