Hi everyone,
I’m looking for some help with the side effects of kadcyla. I have only recently been told that me targeted treatment has to change, I was expecting a phesgo injection. Quick with no side effects. Now I’ve been told it will be an hour long infusion of kadcyla and my oncologist didn’t tell me much, plus I was in shock that it’s changing.
Has anybody had to go through the 14 rounds? I’m back at work now and I don’t know if I need to have time off again or anything. I’m over thinking it all, am I going to loose my hair again? Will I need to take the whit blood cell injections?
so many things going round my head and I would love it if someone could share their experience of this drug with me.
thank you xx
Hi Lindo and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I’m Anne, one of the Community Champions here on the Online Community, and although I have no experience with kadcyla I can understand you wanting to connect with others who do. To do this, can I recommend you join a group specific to your type of cancer. As you haven't said what that is I can't give you a direct link to the right group. However, you could either let me know or look through this list.
Once you've joined the appropriate group, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your diagnosis and proposed treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
