Hi all,
Does anyone have any experience of truncal lymphoedema? If so, what were your symptoms/experience?
The reason I ask, is for about a month, I have had what looks like the start of a bruise around my shoulder blade. It's red and about the size of a 50p coin. It has not changed. I have been monitoring it.
At the beginning of the week I noticed a new red patch on my back, at the bottom of my ribs - its around the same height as my elbow. so this is a separate patch to that that is on my shoulder blade.
This new patch is vaguely pink, it does not look like a bruise. It looks like I have been slapped hard, or I have been leaning against something.
I don't tend to wear a bra unless I am out of the house. When I do it is a soft bralette. Sports bras are too tight and uncomfortable now. It is over 18 months since my last surgery so I don't need the support as much and it is unlikely to be caused by infection.
I am wondering if the redness is lymphoedema. I would not say there is any swelling and not really any pain. The redness is more pronounced at the end of a day, even if I don't wear a bra. Hence my thought about lymphoedema - is gravity causing fluid to pool?
How quickly does lymphoedema progress? I am due my annual mammogram in about 4-6 weeks. I am loathe to contact my GP as I have been back to the breast clinic twice in the last year with what has turned out to be fat necrosis with my reduced non-cancer breast. I felt very much like I was making a fuss over nothing and the boy who was crying wolf. So I thought I would wait till I have my mammogram and mention it there. However, I am also aware that prompt diagnosis can be important with lymphoedema.
I am pretty sure this is not recurrence and it is something like lymphoedema but don't want to ignore it or leave it too long to find things are harder to deal with. I am worried that the redness will not seem that much to my GP and they will think I am over reacting.
thoughts, opinions, experiences are all welcome. How is truncal lymphoedema diagnosed and treated etc. BTW I only had 4 lymph nodes removed all were negative. Is it possible for the lymphoedema to be on my shoulder blade and on the bottom of my ribs on my back.
Thank you
Hi Snookie1971 and no first hand experience from me……. but you may want to put up the same post in our dedicated Lymphoedema support group.
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