I've been looking around this Macmillan site and noticed so many people mention a period of waiting; for test results, for decisions by their team, for the next test to be assigned.
People speak about being terrified, unable to sleep, unable to eat or drink, being impatient and nervous.
All, in my opinion, totally understandable and very human.
I wondered if the community can come up with practical ideas on how to deal with these necessary times of waiting.
So I throw this open, though I have some tried and tested ideas of my own. We are all individuals and what works for one may, or may not, work for another! With good will and creativity, maybe amongst the ideas will be something to ease your time of waiting.
Walking is such an excellent activity. If it's near trees, for me, that's even better. Even in the winter there is birdsong and bare trees have a bleak beauty. The air is fresh, actually at 0C today it is too cold for me to go out. I'm old
I swim a lot because I adore swimming.
I love your way of coping.
Yeah the birds were out in force on my last walk, including swans and geese on the canal. Before I was diagnosed, I used to alternate every day between the gym and swimming but don't have the energy for either at the moment. Walking is enough. Take care
When it comes to cancer especially during the diagnostic period and indeed mid and post treatment results….. the waiting can be hard work.
I was first diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of slow growing T-Cell Non Hodgkins Lymphoma……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive T-Cell Non Hodgkins Lymphoma was then presenting so I have significant experience in waiting.
Then combine this with…..
Allergy related Asthma
Thoratic & Lumber Spondylosis - Spinal Osteoarthritis
Pleural Thickening & Pleural Plaque (Right Lung) - Asbestosis.
Medically induced hearing loss due to medication used for Lymphoma treatment. Right Ear 85% loss with remaining 15% a muffled sound with continuous pulsing 24/7 and Left Ear 50 – 60% loss + Tinnitus.
and……. A Fib and a Heart Attack…… so if waiting was an Olympic Sport….. Scotland would have a multi Gold Medalist…..
But 25+ years ago one very important nugget of advice I received from my amazing Specialist Cancer Nurse (CNS) has stayed with me all these years….. and her blunt and to the point approach was what I needed and I did appreciate it.
”Mike when is comes to the anxiety of waiting for results, scans and the post treatment ‘what if’s?’ she told me that the ‘cancer anxiety train’ is always sitting in the station....... but we can only get on it if we go to the ticket office and get a ticket....... don’t go in the queue and get a ticket…… go into another queue for something that you enjoy, that will distract you and that will bring joy and peace……. Mike you can throw all the stress and anxiety you can muster up at this but the only thing it will do is make your stress and anxiety worse and then you get sick”
Hi Mike, my first reaction is wow, what a story! It knows it sounds very inadequate but I don't know what to say, except you must be an amazing guy and an inspiration to me and everyone else.
My issues fade into insignificance by comparison, although I will take a way two things
Your nurse's comments about stressing out and your inspiring story.
Thankyou and hope this year brings you improved healh
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