Cooling Cap Recommendations

Hello MezKez 

I haven't had the experience of a "cold cap" but a do remember reading a cracking article about it - here's the link:

 The Changing Faces of Cancer- Scalp cooling, Hair loss and Regrowth. 

I do hope you find this link helps.

I am sure others will be along with some further help.

Best wishes - Beian.

Hi MezKez, and welcome, my only experience is with my daughter, and her experience wasn't very good, it extended her treatment time by 90 minutes, and even taking paracetamol well before treatment, always got a headache, sometimes a pretty bad one, and all to no avail, she lost nearly all her hair, My daughter is going through it again due to a recurrence, and is just going to see what happens this time, PS, her hair grew back thicker than before and quite quickly.

Just to add to Brian, Millibob's post, Macmillan's Information and Support page has lots of advice too, just type in, scalp cooling. My very best wishes with your treatment.

Eddie xx

Hi MezKez 

I haven’t had experience myself of using the cold cap as the chemo I had luckily didn’t cause hair loss.

However, I notice that you haven’t joined any groups yet, and wondered if it might be helpful for you to join the appropriate support group for the cancer you have, where you can connect with others who can share their experiences of cold capping. 

If you’d like to share with us which cancer you have and the chemo you will be having, I’ll be happy to direct you to the appropriate group. This chat group you’ve posted in is a very general group which not all members may read so you’ll widen your audience in a cancer specific group. 

Sarah xx

Hi,  

I have used a Paxman cold cap for three of my chemo cycles now and still have a good head of hair. I know it varies for everyone but it does also protect your hair follicles even if you do loose your hair. That means you are giving your follicles a fighting chance. Make sure the nurse puts in on correctly and don't be put off by the negativity you can get from the nurses.

I didn't find it to bad definitely bearable and I had it on for around 7 hours. 

Good luck xx

Hi,  When you say you had it on for 7 hours is this the before, during and after duration for the cooling cap? I've read 1-2 hours after treatment it is used?

Hi,

yes that is from pre cooling before treatment to 1 1/2 hrs after. Hope you find it ok. X

How long is pre-cooling?  Sorry for all the questions. 

First 15min are the bit that is the coldest once through that it gets easier. Pre cooling is 1/2 hr. Although does differ for different t chemo regimes.