Heyy guys,
Has anyone else ever had to take these Olaparib/Lynparza treatment tablets before??
If so have ya'll ever really suffered from them and if you have suffered from them then what did you do/take instead like what are the alternatives??
I have Stage 4 Serous Carcinoma Ovarian Cancer and I was first prescribed 300mg of these tablets about 2 months ago and I took them for a couple of weeks but they just made me feel incredibly rubbish like I was just soooo so tired and out of energy all the time and I felt really nauseous and could barely eat like there was literally one day were all I ate was a banana which definitely isn't great at all, especially when I've literally been trying to gain weight!!
I just wasn't functioning like a regular human being anymore, so I stopped taking the tablets as advised by the doctors and I immediately felt soooo so much better and went back to normal again within a few days!
I had my regular treatment (Avastin/Bev) thy I usually have every 3 weeks on Thursday after just over a month delay and they gave me two new boxes of the same tablets but this time they've lowered it by 50mg, so I now have 250mg instead of 300mg.
I've been taking these for about 4 days now (since Thursday night) and I once again just feel absolutely rubbish!
I'm extremely tired and have no energy whatsoever, my body is always really achey, I have no thoughts or emotions anymore and I always feel really nauseous and can barely eat again!!
I've been trying soooo so hard to get my life back again after this absolutely horrendous year and I finally almost felt like a normal and somewhat healthy 26 year old human once again, but now after these tablets I just feel like I'm going backwards and back to where I was at the beginning of the year when I was very seriously ill and it's just soooo so frustrating and disheartening for me and even my family
We're gunna give the tablets a week and if I'm still bad then I'm just gunna stop them as I really don't wanna be feeling all ill and rubbish over Christmas, especially as I already sadly missed Christmas last year due to being very seriously ill (I was diagnosed with Cancer in March/April this year)
My parents are gunna ring up my team at the Cancer centre to see what they say and stuff anyway, but we were just wondering if anyone else has had to take these tablets and how they've affected you and what you did about it or what alternatives there are and stuff if they were also rubbish for any of you??
Thankyou
Hello thelittlewarrior98
I to am on the Olaparib and Bev treatment but mines the opposite way around ! I had to stop the Bev for a month and felt much better than with the combination of the two treatments?? I wonder if there a connection?? Anywho I found that for at least 12 weeks of taking olaparib I had the same as you, it’s like you have constantly got the flu! But after those first few months of my body adjusting things settled down and you kind of get use to how you feel. The reason I’m replying is that the Bev treatment is only for a limited time ( mine ends February) but the Olaparib can be continuous for up to 2 years, and sometimes even longer! I have found out I can have it indefinitely as long as my toxicity levels are fine and my cancer is still stable ( I’ve remained stable since starting maintenance) my hope is the Olaparib will keep my cancer stable for a long time! This is just a suggestion to help you decide on what to do with regards to continuing your treatment options, good luck with everything you’ve come so far and are doing amazing x have a great Christmas x x
Thankyou!
My Bev treatment ends around August/September next year so I've still got quite a while with that yet and tbh I really don't think I can go that long (12 weeks like you) with feeling nauseous all the time and not being able to eat, especially as I can't risk losing weight again!
I hope you have a great Christmas too :-)
You do what you think is best for you my lovely,make sure you get all the advice you need and do what’s right for you x good luck with everything going forward x x
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