Gestational-Trophoblastic-Disease

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Good Evening Everyone,

So sorry that I haven't been posting or reading anything on this site for some time, as my new life was going excellent. I was coming to terms about losing my wife to SCLC and had met someone else. We hit it off straight away and the relationship was blooming. We have a little boy aged 19 months and life is great.

Unfortunately my partner has had a rocky 18 months since our son was born with heavier than normal periods. She was under the care of her G.P. who has recently referred her to a Gynaecologist. The Gynaecologist performed an internal examination and also a Biopsy, which the results are now back. The diagnosis is Gestational-Trophoblastic-Disease. Has anyone else here had any experience of this? We have been told to expect many tests and are having to travel in 10 days from Birmingham to Wembley for scans as no Surgeon in Birmingham is a specialist in this type of Cancer.

Any advice would be appreciated

Billy the dog

Billythedog 1 month ago

Hi again everyone. It was some weeks ago that I wrote the above blog, but stupidly forgot to press post.

We have both since attended an appointment, in Charing Cross Hospital (London) as this is a Very Rare form of Cancer. The odds of getting it are 150000 to 1. There are only two hospitals in England that are aware of how it is and what it does.

It is apparently caused by Pregnancy with parts of the placenta (tiny pieces) attaching to the lining of the womb. They then stay behind and become Cancerous (GTD) This can then move to the Lungs, Liver and Brain.

My partner had 2 hours of scans and bloods and now we have to await the MDT having a meeting about her case. They are suggesting a full hysterectomy first, maybe chemo after. This will mean that the op has to be done in Charing Cross Hospital and not our hometown of Birmingham because the pathology that needs to be carried out on the womb when it's removed only has a shelf life of an hour and this hospital is the only one of two able to do it.

This Cancer has suddenly appeared on the radar of Doctors and Professor's, and is sadly making me question a lot of things.

Please if you want to put any input into this post, feel free and I will try and reply as soon as possible.

God Bless you all

BILLYTHEDOG

SarahH21 1 month ago in reply to Billythedog

Hi Billythedog

You did successfully make your post here in this group a couple of weeks ago as I remember replying to you.

I think because of its rarity it might be hard to find others with a similar experience to be able to make replies to you but there may be someone reading this post who can help.

it will be hard to be undergoing surgery in London, being so far away from home, but as you have said there are very few places able to deal with this particular cancer. The centre I referred to in my last post where my oncologist is a director in Sheffield was established in 1973, so it has been known about for many years rather than being something newly discovered but that doesn’t make it any easier for you to deal with.

Please let us know how everything goes, and I’m sending best wishes to your wife for her surgery.

Sarah xx

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