Hi, my 20 year old son is starting on this treatment next month. It's a targeted treatment for a NTRK gene change
Just wondering if anyone has been on this treatment and what are side effects like. Looking like my son could be on it for years. My son has a very rare cancer and we don't know of anyone of his age with the cancer or who has been on this treatment.
I haven't had this treatment so hope you don't mind me suggesting that you might connect with others who have had this if you also post in the head and neck cancer group, which I can see you've joined.
There is also information from Macmillan if you click here about the likely side effects.
Wishing you and your son all the best.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
