Good Evening Everyone,
So sorry that I haven't been posting or reading anything on this site for some time, as my new life was going excellent. I was coming to terms about losing my wife to SCLC and had met someone else. We hit it off straight away and the relationship was blooming. We have a little boy aged 19 months and life is great.
Unfortunately my partner has had a rocky 18 months since our son was born with heavier than normal periods. She was under the care of her G.P. who has recently referred her to a Gynaecologist. The Gynaecologist performed an internal examination and also a Biopsy, which the results are now back. The diagnosis is Gestational-Trophoblastic-Disease. Has anyone else here had any experience of this? We have been told to expect many tests and are having to travel in 10 days from Birmingham to Wembley for scans as no Surgeon in Birmingham is a specialist in this type of Cancer.
Any advice would be appreciated
Billy the dog
Hi Billythedog
I'm sorry to read that your wife has been diagnosed with gestational trophoblastic disease, which I have to confess I'd never heard of. On looking it up I can see that it can be both malignant and benign so I'll be keeping my fingers crossed for the latter.
As you know, the online community is divided into different support groups so I'm going to recommend that you join the womb cancer forum where you are more likely to connect with other women who have been diagnosed with the same disease as your wife.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your wife's diagnosis and investigations to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
Hi Billythedog
I’m sorry I don’t have the right experience to offer advice, but my gynaecology consultant/surgeon is a director of one of the centres of excellence for this condition so I had heard of it before. Given that it is very rare, it might be difficult to find others with the right experience to give you advice, so it will be helpful for you to update your post on the basis of your appointment in London.
Has cancer already been confirmed from the biopsy? Although this condition is related to the womb, it is not womb cancer and is treated differently, so if you post in the womb cancer group, it will be important to bear this in mind.
Cancer Research UK has some information here, in case you haven’t seen this-
You could also ask any questions to the Macmillan nurses here-
I hope you find out more at your next appointment.
Sarah xx
