Emotional dump of feelings *warning*

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This might sound really stupid, but do you actually hear your oncologist say those words/phrases. You are in remission or there is no evidence of disease?  And how long till they say those things if they in fact do?   I have had surgery, 18 weeks of chemo, 15 sessions of radiotherapy, they have switched off my ovaries, and I am now in targeted therapy for 12 months- (oral) I’m going back to work next week, surely I should be feeling positive and in high spirits, right?! 
but here’s the truth…. I don’t! I’m tired, I feel lonely and isolated and like I’m not the person I used to be and I don’t know what kind of person I actually am.  I feel needy and silly for not being happy and pleased that things are going in the right direction, I think people will get fed up with me, and honestly I’m fed up with myself. I haven’t heard the words - no evidence of disease, and the treatment is ongoing, maybe I want/need to hear them.  Sorry about the ramble- but are these crazy emotions ‘normal’ ?

  • Hello  

    I don't think you sound stupid at all!!  We are all human and all different!!

    So I am at the same stage as you (different cancer I should add as I am male) - Treatment over - back to reality, but am I "cured"?? I am on a curative pathway but am I cured, will it come back? Will the "friends" who chose not to be friends return now the cancer has gone?

    Yes, we all ask questions - yes we all react the way you do so don't worry. Let me give you a couple of "links" that may help-

    Here's our guide to "Cancer and your emotions"

    https://www.macmillan.org.uk/cancer-information-and-support/treatment/coping-with-treatment/cancer-and-your-emotions

    We also have another forum for emotional support and here's the link

    Emotional support forum 

    Don't forget there's also our support line on 0808 808 00 00 (8am to 8pm 7 days a week) feel free to give them a ring.

    I do hope the above helps and that your return to work goes well - we are all with you here you can do this!!

    If I can do anything else for you feel free to give me a shout.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Hi Whynot

    Sorry to hear that you are struggling after having treatment for breast cancer.  The emotions you are feeling don't sound crazy or stupid at all and are perfectly normal.  We all experience them at times throughout our treatment and afterwards.  There is a great paper by a Dr Peter Harvey which explains what the post treatment world is like.  I read it myself and found it very informative.  Here's the link to the article if you'd like to read it: After the Treatment Finishes - Then What?..

    If you feel up to it why not ring the support line on 0808 808 0000 to talk to someone about how you are feeling.  They will even arrange counselling for you if you want. Also if you have a Maggie's centre or another cancer centre near you why not give them a ring or call in to talk to someone.

    Wishing you the best of luck with your return to work

    Best wishes

    Daisy53

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  • Hello  

    Thank you for adding that link - I knew about it but for the life of me earlier today I couldn't find it. - i have added it to my collection of important "bits" to keep.

    I trust you are well and thanks again for adding that.

    Kind Regards - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Thank you to both of you for your replies. And links/resources. I suppose just take it one day at a time, it isn’t a race is it. 
    xx

  • Hi Whynot

    Taking it a day at a time is a good idea, as you said it isn't a race. xx

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  • Hi, Whynot

    I am having exactly the same kind of feelings.

    Surgery, 6 cycles of chemo and 20 radiotherapy sessions. Current scans show "no evidence of disease"  so why am I not jumping for joy and rushing out to celebrate? I feel lost and uncertain about everything, like I am waiting for someone to pop up and say it's back again... 

    I have just read the suggested link below about "After the treatment ends" and I must say, it hit pretty much everything I'm feeling and reassured me that it is all "normal" in as much as all these feelings are felt by , probably, most of us who have been drawn into the cancer club.  It is 8 months since my last treatment but I am still knackered - sorry-fatigued and have little to no motivation . I had mobility difficulties prior to cancer and that's got worse with muscle weakness and neuropathy after chemo. 

    You are not at all stupid, you are fighting your way through a very scary process that is difficult to explain to family/friends. I find myself not wanting to "worry" or "burden" people  and consequently end up keeping all my doubts and fears to myself, as I suspect you may also? That alone is tiring!  I can't be much help other than confirm that you are not silly nor are you needy for wanting reassurance or just someone to rant to.

    I hope the return to work goes ok for you.

    Kindest regards

    Tykico

  • You are more help than you realise just by letting me know I’m not alone in these feelings. I am very great full for you taking the time to reply.  

    first week back at work was rather exhausting Rolling eyes but overall a positive step x