Fear of not seeing family grow up

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Hi all,

I currently have an incurable brain tumour that doesn’t have a good long term diagnosis. I have a niece who was born recently, and I have a lot of fear and sadness that I won’t get to see her grow up, as well as missing out on so many things with family and friends. 

Does anyone have any advice on how they deal with this? 

Thanks so much 

  • Hello  

    A warm welcome to the Macmillan online Community. I am so sorry to find you here especially in view of your diagnosis.  The online Community is divided up into "chat rooms" which are cancer specific and to "meet" with Community members on the same or similar journey may I suggest you join the following forums:

    Brain cancer forum  

    Living with incurable cancer forum - patients only 

    To join these groups, click on the link provided on the black banner at the bottom of the page when it opens up. (There may be a delay in joining the "only" group as this will have to be approved). Once you have joined the groups you can introduce yourself in the "New here - Say Hello" section by either copying and pasting your original post or writing a new post.

    There is also our support line on 0808 808 00 00 (8am to 8pm 7 days a week) where you will find lots of extra support should you need it in view of your circumstances.

    If I can do anything else for you please let me know.

    Best wishes - Brian.

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

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  • Hi Domb,  and another warm welcome from me, I am on the Living with incurable cancer-patients only from, which Brian has suggested, where you will find many wonderful people who are going through what you are, we have found a way to live with our prognosis and the thought of not seeing your little ones grow up,  I have a 10 week old granddaughter and twins due in January and have the same thoughts as you, as do many of my friends on the forum. We also have a few with brain cancer, and many who are well past the time they were given. Being able to talk to others who know exactly what you are going through is so important as everyone on the forum would agree, I hope you think about joining, best wishes

    Eddie 

  • Hi Eddie,

    thank you so much for your kind message, I really appreciate it. The forum sounds really supportive so I have joined it now.

    Dom