Lack of appetite

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Hi. I’m Mandy and I have Myeloma. I’m 17months post stem cell transplant and chemotherapy. I’m currently on maintenance therapy Revlimid and apexaban.

The one thing I’ve noticed is that I have zero appetite.  My appetite was bad enough before the cancer diagnosis and treatment but now it’s really really bad. For example, I could literally go all day and not eat. 

My thyroid is under active aswell which makes loosing weight impossible, believe me I am always trying. The steroids I had to take as part of my treatment which swelled me up real bad, I literally had Frodo feet!!!…..

Ive told my haematologist and they’ve seen my frustration at this. 

The thing is my appetite is the problem and the lack of it.

  • Hi Flojo welcome to the forum and I am sorry that you have not had a response as yet. Im wondering if it might be possible for them to get you to see a dietician re these appetite issues as they may be the best people to see you and maybe suggest foods that you would get enjoyment from eating. I'm sure someone who has more knowledge and experience of your type of Cancer will be along soon and may be able to help more . I certainly hope you get some resolution to this which meets your health needs. 


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  • Hi again  having had 2 Allo (Donor) Stem Cell Transplants I understand these challenge rather well….. my appetite took years to recover.

    Why not join and put up a post in our dedicated Stem Cell Transplant support group.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • I'm sorry to hear about your struggle with loss of appetite.

    It can be challenging to maintain a healthy diet during cancer treatment, but there are some strategies that may help you:

    • Eat small, frequent meals: Instead of trying to eat large meals, focus on consuming smaller portions more frequently throughout the day.
    • Choose nutrient-dense foods: Opt for foods that are packed with nutrients, even in small quantities.
    • Experiment with different flavors and textures: You may find that cold or room temperature foods are more palatable than hot foods.
    • Stay hydrated: Even if you're not eating much, it's important to stay hydrated.
    • Consider nutritional supplements: If you're struggling to meet your nutritional needs through food alone, talk to your healthcare team about the possibility of incorporating nutritional supplements into your routine.
    • Manage side effects: Some cancer treatments can cause side effects that affect appetite, such as nausea or mouth sores.

    It's important to remember that everyone's experience with cancer treatment is unique, so what works for one person may not work for another. Also, use only reliable and trusted pharmacies to get effective and genuine medications.

    I hope you find these recommendations helpful!