Can anyone advise??

Hi Butterflywine, Have you tried the helpline as they can pass you onto our MacMIllan Buddy Service and you will get telephone or Community Support to talk things through generally not the main Cancer issue they also have access to possible therapy support as you mention you have a job obtaining this
If you call the number below and explain your problem and ask for Buddy Support they will assess you

Hope all comes right soon with the results

Take care

Tony

Hello ButterflyWine  A warm welcome to the online Community.

Waiting for test results is never nice but it's all part and parcel of the Cancer journey. I see you have already joined the CLL forum where you will find plenty of help and advice.

When I was waiting for results and indeed my formal diagnosis I tried to carry on with life as normal, in fact I threw myself into work as this took my mind of what I knew was to be a life changing meeting - it worked and I got plenty of work done as I work for myself!!

For that little bit of extra help may I suggest you call our support line on 0808 808 00 00 (8am to 8pm 7 days a week) They are a great bunch and will be able to help.

I do hope when you get your results they are bringing you good news.

Best wishes - Brian.

Thank you Tony. I will give the number a call and explain what is going on. 

Sam

Thanks Brian!

I'll be giving the support line a call. My concern over work is the type of work I do - I work in the pensions industry as an Actuarial Analyst and need to be totally on the ball. The pain and exhaustion that I have right now is just making things too difficult and without a diagnosis I can't get any further treatment from my GP. 

I can only hope for good news and that will then lead me down a different path of investigation regarding what's wrong with me. 

Sam

Hello ButterflyWine Sam

I fully understand where you are coming from. I work mostly on the Prostate Cancer forum (yes I have Prostate Cancer - full story available by clicking on my avatar). When any of my "flock" are awaiting results or appointments I suggest to them a polite telephone call to your team asking for a progress update/results/an earlier appointment sometimes produces results and if you mention anxiety this often helps.

As for worries about employment we do have a work support advisor and if things become difficult there is plenty of free advice, here's the link

 Ask a Work Support Adviser 

although I hope it's a link you never have to use.

If i can do anything else for you please don't hesitate to contact me.

Best wishes - Brian.

Hi again ButterflyWine …… it’s 5 days since we last talked……. so no signs of your Heamatology appointment yet….. with the time that has passed I would be checking with your GP to make sure you have not fallen through the NHS  system.

Hi Again Mike!

I have seen a message on my NHS app from Haematology to my GP saying that they've responded (to my GP) about the referral. I've called my surgery and they have no idea what I'm talking about so that's just made me even more anxious! 

Apparently I have to wait until the 24th but it's literally driving me crazy with anxiety. I may extend my current sick leave to relieve some mental pressure. And also because I still feel really unwell physically. 

Sam

Hi Sam….. time to get your pointy elbows into your GP surgery doors along with a screen shot of this information and ask searching questions including what can they do to help you physically in the time being.

If you have a contact number for the Heamatology Department or the hospital appointments department then give them a call and see if there are any cancellations.

…….. the aim of the Faster Diagnosis Standard (FDS) is 28 days from referral to diagnosis.

((hugs))