Hi everyone, my name is Leah and I'm writing on behalf of my dads cancer journey so far. We have had the worst couple of months and days like today I've felt so lost. My dad (age 62) had a tumour discovered in August 2023 and it was around 7cm, his consultant opted for a radical nephrectomy and he had the kidney and tumour with quite a lot of fat around it removed. The recovery was very tough and extremely hard to see him struggle daily but as the hero he is, he got through it and looked brilliant within 4 weeks. He was diagnosed with T3a clear cell carcinoma and grade 4 cells which, devastatingly are the most aggressive and likely to spread. He was also placed on Leibovich scoring system as a 7 which is basically 70% chance of reoccurring. The consultant didn't give him any other treatment as he said if he was worried, he would have put him in for therapy, but he was very happy with how the op went and was confident they removed everything and more. So fast forward to January 2024, when he has had his first scan of his 3 monthly scans going forward and they've said everywhere is clear however a nodule mass has been discovered on his adrenal gland on the same side of the kidney that was removed. We're trying to be hopeful but we know it's a possibility it's cancer.
I was just wondering if anyone has or is in this same position and could shed a bit of light on these very dark clouds hanging over us at the moment. Being diagnosed with cancer is a very lonely place at times and my dad has every bit of support in all of us but it would be great to hear from people around that have dealt with similar.
Thank you very much!
Hello Lboyes2
I am so sorry to read your dad's journey down the kidney cancer route - he looks like he was doing well - however these things do come back. I can't advise you on this one - I have a different cancer, however for the best advice I would suggest you join the
To do this, click on the link I have provided, this will take you to the forum where Community members are on the same or similar journey and should be able to answer your questions. When the page opens up, click on "join" on the black banner at the bottom of the page and once you have joined the forum click on +new. You can then either copy and paste your question or post it again to introduce yourself.
I hope this helps. If I can do anything else for you please let me know.
Good luck on your dad's journey and thanks for posting.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Hello Lboyes2
It's no problem - until I became a Champion with MacMillan Cancer support I had no idea how to post a link or cut and paste - it's all thanks to their training you got signposted to the Kidney Cancer forum in the first place so no worries. I am pleased you are going in the right direction.
As you find your feet on the site you will find that many of us have our cancer journey available to read - it helps other Community members understand what is or can happen. You can read anyone's who have filled in their profile by clicking on their icon or user name - my journey is going well thank you - there's going to be a happy ending.
To update dad's journey - click on the icon of the chair on your home page -then "profile" and then "edit" - it just helps people to see where you are on your journey.
Thanks for your good wishes - Stay safe and I hope all goes well for dad.
Kind regards - Brian x
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
