Hello all
i joined to find some help or just chat to others who may have been through similar as feeling lost.
my mum who is 80 , had covid last Oct and developed the ‘ covid cough’ she got quite unwell within the 10 days and ended up in hospital with low potassium, c diff and a blood clot on her lung.
while having the chest xray they found a incidental finding on her lung.
odd a she is a never smoker and never worked in any environment for us to suspect it was anything bad.
after a ct scan, pet/ct and biopsy of the lung lesion ( there is 2) we were told last week it is cancer, but not one that started in the lung.
its suggesting it started in the gynae area, kidneys or upper gi, poss colon ( as colon lit up slightly on pet scan)
mum did have cancer in her womb , but 17 years ago!
they said it would be unlikely after all this time it would have now showed up in the lung , so want to do endoscopy.
we asked after all this, if no cancer can be found elsewhere, what are the treatment options, and we have been told
surgery is a no, chemo no as would make her too unwell
& also the cancer is in 2 different lobes, no to radiotherapy, and immunotherapy would not work for this cancer type.
Not sure if this is any help by the larger tumor in the lower lobe is a high grade & the other in the upper lobe is a moderate.
I just feel that surely something is worth a try , but I fully understand her age and her health has declined in the 3 month since covid, she has lost alot of weight and struggling to eat as feeling sick and like food is stuck in her throat.
I can’t stand the thought of them not finding where the cancer has come from and then just leaving her.
even if they do find it in the colon etc then I’m sure they would still do nothing as stated in her letter & the reasons :(
anyone else had a cancer diagnosis with no known origin? How common is this?
thank you
Hi Rio43 and welcome to the community.
I’m sorry to read about your mum’s situation-these are certainly very difficult times for you all.
There is a group within the community for situations where the primary cancer has not been located, and I’d like to suggest that you join and post there to connect with others dealing with a similar issue. If you click on this link I have made, it will take you directly to the group.
I hope you’ll find it helpful to read the posts there and hopefully get some help and advice from others.
You might also want to ask questions of the nurses on the forum, and you can do that by clicking on this link
Please allow a couple of working days for them to reply. If you need any help in navigating the community, please come back to me and I’ll help if I can. We have other support groups which I can also direct you to, for example if you are are carer, and for family and friends. Just let me know if you think those might be helpful for you.
Sarah xx
