Hi l was taking in to hospital on Saturday and the doctor mentioned arranging palliative care for me. He didn’t really go into details about it amd I was wondering if anyone can explain it to me? Thank you kevin
Hello Josie27 and a warm welcome to the community, consultants see palliative care as treatment to stop or reverse "temporarily" or slow down the spread of your condition but not to cure. Kevin there are people on the forum who have been on the not curable pathway for over 20 years, If you could give us a little more information or have other questions we would be happy to help, take care, Eddie
Hello Kevin. I'm very sorry to read that you have been told this information but not had it explained to you properly by the team caring for you. As Eddie has said, this type of care means that your illness cannot be cured so therefore pain and symptoms are managed. However, palliative care is a broad spectrum and is not the same as end of life care. For example, I have had palliative chemotherapy, my cancer can't be cured but the pain and symptoms have been managed by the oncologist and my cancer is now stable.
If you are able to, I would ask for some clarification on what exactly they mean. If this is not possible, you could ring the Macmillan helpline and they may be able to provide some help or advice, this is the link to contact https://www.macmillan.org.uk/about-us/contact-us
