Hi Everyone,
My wife was diagnosed with Stage 4b Endometrial caricnosarcoma about 7 months ago now. This of course has a poor prognosis. We have never had a discussion with her Oncologist about the "true" prognosis. i.e. 1 year, 2 year, 5 years.... She doesn't want to know, I think she should. Here's why and any advice here?
One would make different decisions if you have say 20 years to live or less than a year. If shorter, perhaps you will spend more time around family, doing those things on the bucket list and so on. If you have a much longer time, then ... whatever you like. Seems obvious.
My wife mentioned to me yesterday that perhaps she should have spent more time with the kids over XMAS. So, she must be thinking about it.
I simply can't go to the Oncoloigist and ask the question "How long...." or can I? How do I start the conversation with her that perhaps it's a good idea to know the possible outcomes here? That by doing so, will allow her to make informed decisions about the things she wants to do and so on?
Take care
Hi JamesYSK
My wife has Leiomyosarcoma. She never wanted a prognosis and I really struggled with that especially as we had a young son.
That was all over 10 years ago now. Janice has had two lots to chemotherapy - the first created quite a few problems of it's own but the second caused the cancer to go to sleep. Where we are now she says the cancer is not bothering me and I am not bothering it.
One thing we learnt is that sarcoma statistics are really not very useful - based on older treatments and with a very small sample size.
Having been on the community for some time I have seen many people outlive a prognosis, some who it might almost seem die to the order of that prognosis and others who die even before the prognosis. Often the loved ones in the later case feel robbed.
I sometimes wonder if I had got a prognosis how long it might have been I could have kept that from my wife and how that might have made her feel.
What really helped me was a living with less stress course. It helped me realize that while I might get a guess how long my wife would survive her cancer it told me nothing about how long any of us my life - we could for example die in a car crash on almost any day or 101 other ways. I was also bizarrely helped by a major accident locally where a number of people died at work.
Hope some of that helps and whatever you decide at the end will be the right decision
<<hugs>>
Steve
Thank you for taking the time 
appreciated
