We have lived with cancer for our whole relationship, being in and out of remission.
It sounds stupid but all of our other battles have been straight forward (compared to our currently battle).
The first 2 battles were the same cancer with an 2 year gap between the lung cancer becoming active and removed by surgery and little to no further treatment needed.
Our world was turned upside down in November 2021 when a new cancer was found with a rare mutation in his remaining bowel. He had a further surgery to remove the remaining bowel (so we thought great that’ll be it gone).
unfortunately it had spread to his stomach and this cannot be removed as it’s too dangerous and in a untouchable area. We have so far had 2 treatment courses where this nasty cancer has continued to grow and not had any impact. (He has been on treatment since April 2022!)
He is on a third treatment now and we have a follow up appointment next Thursday & I am so scared on next steps. If this treatment hasn’t had any impact. We worry how many more treatment can be offered (because of the rare mutation). I can’t sleep with worry & feel like I’m wishing time away to know the next steps.
We regularly go on caravan holidays to make memories why we can but it’s so hard! I am never a negative person but this is just not giving in.
I do what I can, I work full time, care for my partner and try and be the best mum but I just needed to tell people who may be in the same boat!
Everyone around me are great, but haven’t lived the life we live & sometimes I think they under appreciate how hard it can be.
Hi KPD2104 I am so sorry to read about the journey you are all on....... you are doing an amazing job...... but we all know that there are a lot of challenges Supporting a family member with cancer so it is important to talk with others and get support.
I do see that you have put up the same post in our Carers only support group, this is a safe place where you will connect with others navigating the same support challenges.
Do remember that the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
We also have our Ask an Expert section but do allow a few working days for a reply.
Talking to people face to face can be very helpful so do check to see if you have any Local Macmillan Support in your area, do also check for a local Maggie's Centre as these folks are amazing.
Supportive ((hugs))
