New cancer diagnosis

Hi Mossgiel and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I'm sorry to read that your partner has recently been diagnosed with lung cancer and I know what a difficult time this will be for you both.

As you know, the online community is divided up into different support groups so I'm going to recommend that you also join the lung cancer group, which is a great place to ask questions, share experiences and get support.

To join just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here, and join in with existing conversations by clicking on reply.

It would be great if you could pop something about your partner's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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Unfortunately we're at the mercy of the system once we're in it.  One part of the machine will send a referral across to another part, but that leaves us in limbo until we're finally contacted.

One thing you could do is follow up with the team you saw and confirm that they have sent the referral across to the cancer care nurses (and maybe they can give the cancer care nurses a hurry up).

Hi Mossgeil

my mum was diagnosed with Lung Cancer in April while in hospital being treated for something else.  The support both she and we as a family got was non existent from the hospital.

when she got discharged from hospital we waited for all the support kicking in and it didn’t unfortunately.  In a state of desperation I eventually contacted our GP surgery and rambled onto the receptionist about how little info and help we had been given.  The hospital had done nothing to manage our expectations at all.  She then arranged for a GP to call me to talk me through things, the same GP then came out to visit my mum and was fantastic.

He spent time talking to her and reviewing her medication, checking for infection etc.  Our support kicked in after that.  

My mum passed away 3 weeks after she was discharged from hospital which I am still struggling to get over, however, I will always be grateful to that GP for his care of my mum and support for me which he is still doing to this day.  I hope your GP practice will be able to offer yous similar support.

Thinking about you at a time which is so exhausting for everyone concerned.