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Hi am New to this chat I joined the lung cancer forum the other day as I recently in last two weeks found out I have cancer on my lung. Theyve said nothing else about it as running test. Having the PETscan tomorrow.. I am just scared, frozen to my chair. I am all alone except for my kids. I have 5 with 2 of them still at home.. I just dont know what to do am so scared.. I feel stupid reaching out every where but I dont know what else to do. I know nothing yet and my poor 18 yr old gets my down mood all the time and I feel horrible . So all of it I just want to scream...

  • Hi Frazzled

    Welcome to the forum. 

    I am so sorry to see that you have had a diagnosis of lung cancer. It is such a scary time when you first have that diagnosis and that you still need to under go some more testing to find out what happens next. I hope that your PET scan tomorrow goes ok. I am sure you will be very well looked after. I was at all my scans. 

    I can understand how scary it feels right now but the scan should help them find out what needs to happen next for you. Once the scan is done the doctors can get together and have a MDT (multi disciplinary team) meeting to see what the best way forward is. Then they can come back to you to talk through options. I felt much better and things felt more in control once I knew what was going to happen next. The thing with cancer is it just seems to take all your control away and turns everything upside down for a while. You'll be given a CNS (cancer nurse specialist) who will be able to give you support throughout your cancer journey. Mine is fab and never minds questions and has been a great support. 

    I understand the panic. We have some lovely people on the Support Line and they will understand and just listen if you feel that would help. Sometimes just talking to someone you don't know can help. Please don't sit and worry- pick up the phone and call them. 

    Let us know how you get on tomorrow, it is the next step to finding out what happens next. Once you know and are clear about what needs to be done I think that things will feel a little calmer and under your control.  They did for me.

    Jane

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • Thank you, am just at a loss.. and scared..

  • I understand. It is all such a shock at the moment. But it does get better once you know for sure what you are dealing with and what they need you to do. Take it one day at a time and if that is too much then take it one step at a time. The scan tomorrow should give answers so you are getting closer to finding out exactly where you are at. That's why I suggested the support line- sometimes you just need to talk to someone and express how you are feeling. Good luck for tomorrow. Macmillan are here to support you

           

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

  • I am so sorry that this is happening to you. Do not feel "stupid"- can't tell you how many times I have felt that way as well, but really, no one knows what they are doing. We are all figuring it out together. 

    I am the child of someone whose mom was just diagnosed with cancer and I can tell you right now that we can take on more than you would think. Your children love you, and you just do what you can one day at a time. Sending you a big hug. And guess what, if there is a place you can go to scream, scream. I'm screaming right there with you. We've got this. 

  • Am sorry your going through it to. Thank you so much..I was worried what I was putting on them cause I didnt mean to..my eldest and her husband are champions lately.. oh I feel like all control has been took away and angry and stupid all rolled up in one. I still cant process it.. 

  • I've tried calling it is ok but I guess cause I really dont know what I need to hear well I do but clearly I dont think that's gonna happen..someone go oops we made mistake..  I feel like all I've prepared myself for I didnt do a good job.. but I thought I was healthy so one day I'd go to sleep and God would call me to him.. I didnt prepare to be sick( with other then what I thought was chest infection) so I feel alright or I did and now its messed with my head I cant do anything it's like I'm frozen ..2 out of 5 of my kids have their heads on straight the other three are trying to figure it out and bam mom throws this in the works.. I know none of that is how it works or worked I think I'm so angry cause I cant figure out why me or you to be Frank about it why anyone when Gods supposed to protect us.. sorry I had to get it out.. the scan tomorrow is just got me nervous and it cant be as bad as the biopsy the other day..its just a PET scan.. but difently afraid of the unknown and so appreciative of you and people I've talked to here.. may God bless us all or your higher spirit..thank yall for listening and sorry if it makes no sense

  • I understand, your feelings are valid. 

    There's no pressure to process this. I think we put a lot of pressure on ourselves to understand and problem-solve for things put on our plate, but just know that no one is expecting you to have the answers. 

    One step at a time. Really. I don't even take it day by day, I take it hour by hour - and so should you! Focus on just moving forward as much as you can, and when you find moments where you are overwhelmed with emotion - that is TOTALLY okay! That is NORMAL. Let yourself feel what you need; your children also have support from friends and family too, and will figure this out as well :)