Has anyone had an experience of wanting to do a "normal" poo (via rectum/anus) after ileostomy?
My experience was after my 3rd cycle of chemotherapy, at its worst I was having to "go to the toilet" every 2 hours, for almost 2 weeks, including throughout the night. With continued broken sleep, and feeling generally unwell, it resulted in my 4th chemotherapy cycle being delayed.
Oncology personnel would/could only advise that "it does/can sometimes happen!" this without any suggestion on what it was, or how to cope with the situation!
It got so bad that I discussed the situation twice with my GP, on the second occasion he diagnosed that I had an infection in my (by-passed) large bowl, the infection being Colitis. After a week of antibiotics the issue cleared up and I was able to start my 4th Chemotherapy cycle, albeit later than first planned (I'm now in the second week of my 4th cycle).
I have subsequently discussed this point with a senior Oncology nurse (she was on sick leave during the time I had the issue) .... her answer was "sounds like you had Mucositis ...it can happen!!
It's disappointing that no-one from oncology was able to give me this 'diagnosis' when I needed it, including any remedies ....if there are any!
Hi SWDT and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
As the online community is divided up into different support groups, I hope you don't mind me suggesting that you join and post this in the ileostomy, colostomy and stoma group which is a great place to ask questions, share experiences and give and receive support.
To join just click on the link I've created which will take you directly there. You can then join and start a new post in the same way as you did here, and join in with existing conversations by clicking on reply.
It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
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"Never regret a day in your life, good days give you happiness, bad days give you experience"
