What questions to ask re blood cancer

Hi again Sapphire_24 and sorry to hear about your husband having had been in hospital.

As to questions this link (Questions to ask your medical team about Lymphoma) will help you ...... but they are focused around Lymphoma but the basics questions are the same.

All the best for tomorrow.

Hi Mike Many thanks for your response. It's been quite a rollercoaster since I was here a few weeks ago. Who'd have thought a simple cough could've turned into something so nasty. Even a trip to the dr and prescribed amoxicillin didn't help. Amazingly my husband came through the pneumonia and neutropenic sepsis and is currently shielding under instruction from the hospital pending his appointment tomorrow to get results of the biopsy. We'll be working on our questions tonight. Thanks for your contact.

From my experience Haematologists tend to be very thorough in the u fir stun they give but it can go over your head so do remember to but in and ask them to put ‘their’ information into a language that ‘you’ understand,

Do also ask for booklets/information so you can read up and remember to ask ‘what is next?’…… next appointments?…. next tests?….. treatment (get the exact name of the treatment)

But be prepared for not actually getting a clear  answer and having to have more tests.

Hi Mike 

Thanks for your time and advice yesterday. Sorry if I posted on several forums. Still trying to work out how posting works and where I should post.

The diagnosis on my husband's biopsy results is hairy cell leukaemia, which whilst rare apparently, has a good prognosis for recovery.  As he's recently been in hospital chemo will start later this month to give him time to get over the pneumonia. It's not fantastic news as leukaemia sounds frightening but at least we know what we're dealing with and that prognosis is good. cheers Sapphire

Hi again, hairy cell leukaemia is very treatable and has a good prognosis for recovery. 

You may want to join and post in our CLL, SLL, HCL support group as this will help you connect with others with the same diagnosis.

I will keep an eye open for you in the HCL Group ((hugs))

Hi Mike

Thanks for your help yesterday about posting in the cll, sll and HCl forum. I've tried looking to post on the new here section and struggling to find how to create a post. I've tried clicking on various things and its not working. Can you advise please. Thanks 

Hi again Sapphire_24 it’s one of these ‘once you know how to do this you know’ things

To join the group click on this link CLL, SLL, HCL 

Once the group page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."

You can then put up a ‘new post’ by clicking in the box near the top right with + New or + (Depending on the device you are using) and you are ready to go.

Do get back to me if you need further help.