Hi all.
im new to this group and just to give you a little into my story.
my dad was diagnosed with stage 3 lung cancer back in December, and things have been going ok, then over this past weekend things have taken a change, and my dad had to have his house broken in to by the police as part of a welfare check. He was found up his bed. He has been confused and not eating.
we were called to his house by the community nurse who said that dad had to go into hospital for his confusion and not safe to be left alone. I should add that I live in wales and my dad lives alone in Luton, so I haven’t been around as much as I could have.
when we got to the hospital on Sunday evening he was assessed by the consultant who said that his kidney function was decreasing and they weren’t sure if that was due to him having an infection or whether his medication had caused it.
We didn’t know about the secondary cancers until the community nurse told us on Sunday.
dad was having trouble emptying his bladder and was holding on to quite a lot of wee. They were going to Catheterise him unless he could pass urine himself. Thankfully yesterday afternoon he managed to go and avoided this.
I should also say that dad has been having some quite awful hallucinations as well.
he is still quite confused and is now off fluids but he has text me now and said that my brother is being held by the police, when my brother is at home with his wife and daughter. The next text was a reply to one I sent him earlier in the evening to see if he had any dinner, and he could tell me that he had a small dinner and not had any sleep.
We are trying to get a place in wales for my dad so he can come and be near us and not here alone, but I just saw on another page that usually men who can’t wee with prostate cancer die within a few weeks and I’ve scared myself silly now. Im sat here at quarter past three in the morning worried sick.
dad has refused to have chemo and is accepting of radiotherapy to help and also to have surgery. He was also the most positive we have seen him about moving to wales and starting a new life down with us.
we went to get a cuppa and came back to him to find him looking at places to live near us.
I don’t know if I m preparing to try and find somewhere for him to live or am I preparing to lose him.
I’m trying to take the positive that he wants treatment and it’s giving me hope
please can someone give me some advice. I’m sorry if this doesn’t make sense, say here trying to right this with a confused brain and tears rolling down my face.
Many thanks
Hi Welshwife
Welcome to the forum and sorry to hear about your Dad's cancer and about the struggles you and your Dad are having. It's good that at least he is willing to have radiotherapy and surgery and that he is considering moving closer to you so that you can deep an eye on him. I notice that you are a member of the family and friends forum as well as the Carers only forum so why not put your questions to the members of those forums and I'm sure someone will only be too willing to give you advice. Might I also suggest that you contact Macmillan to get support from one of the fantastic volunteers that work for Macmillan. The link to that support is as follows: https://www.macmillan.org.uk/cancer-information-and-support/get-help.
Hope this is of some help.
Best of luck to you and your Dad.
Best wishes
Daisy53
Hi, having just read your post I would like to offer you my sympathy and your Father my empathy, what a bloody awfull time for everyone concerned, crying is a very human response and as a wise woman once said to me nobody dies from crying so just let it out because we all feel calmer when we release emotional pain in this way, the confusion you say he has could be down to medication , Im no expert but then again neither are a lot of experts, you said your Farther is now in hospital right now and that is the best place to be when your very poorly and certainly better than being alone, perhaps you can worry a bit less knowing he's in good hands and has some company,
Best wises.
Thank you both.
my dad has come to wales to be with us and he has lost his confusion but he does get a bit muddled and forgetful but I think that’s the medication.
the oncologist have said that there isnt anything they can do for my dad. The treatment would probably make things worse than better.
devestating news to try and take in and understand.
my dad has his good days and bad days and today managed to eat a whole bowlful of jelly and custard and had 2 fortisips.
the hospice nurses came out again today and we have made plans for the future. My dad will be going into a hospice just before end of life. It overlooks the mountains and is set in the countryside and he will have his own room with in suite and I will he able to visit every day and even stay with him overnight. He will have the 24 hour care that he needs and the dignity he deserves.
at least he is no longer alone. He knows he is loved and cared for.
x
Hi, well that is quite a turn around and a very good one, cancer diagnosis is life changing and if you live on your own its easy to feel abandoned, small and random acts of kindness make my day, when my mother was in her last few days in this life her 4 children my 3 siblings were gathered around her she said I know you all love me and each other and I have never wanted anything more than that, loved and cared for,
Take care.
That’s lovely.
today my mum and my brother came to see dad. He managed to get up, washed and dressed and shaved and we managed to get him out for lunch. He even had something to eat although I think that is the steroids the dr has put him on.
I see all these little bits of foods and anti sickness and going out as all positive stuff.
my mum thinks we have weeks left with my dad but I think we have longer. I had to pick up the just in case medication today and I really want looking forward to that.
dad was tired when we got back and went to bed and the district nurses came in today for the first time too. It’s very strange having nurses come into your home every day.
Hi,, its so good to hear that, pretty amazing, and nice to spend time together as a family when time is now very precious, I think its not only the steroids that have made him feel a bit better but also being with his family and doing just a few things that he enjoys with the people he cares the most about, you know when I hear doctors and consultants and folations spout on about statistics of how 50% of people will get cancer of some sort in our lifetime I cant take on board just how horrific that is,just as its a number, I truly believe its in the air we breath, its in the food we eat and the water we drink, I'm a 62yr old man and remember the days when cancer was really quite rare, there was nomsuch thing as organic food, we just called it food, we didnt add chemicals into reservoirs to make water sparkle and there wasn't a zillion cars on the making the air poisoned, anyway I'm go now because I'm starting to rant and its time for me to chill
We shall beat it one day.
Hi Palamon
i truly believe you are right. It’s down the lives we lead I think.
i said to my husband today that years ago we didn’t hear much about cancer and now you hear about it pretty much every day.
dad has eaten more today and I’m so happy. I know he isn’t going to get better but I truly believe with love and care and strength we can make him move comfortable. He has this amazing strength and positivity and is convinced we are going to beat this cancer.
I love to see this in him but I know things may change very quickly too. I don’t want to think about that but I know I have done everything I could to help him fight .
Take care xx
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