Has anyone any words of wisdom on how to deal with my mums diagnosis?
Bit of background, 61f with inoperable esophageal cancer with lung cancer too, heavy smoker for over 40 years. She has had a stent fitted to help the dysphagia. Prognosis was "poor" but no real idea how long. She is a really frail, thin and looks so old. She is a really private and independent woman that asking for help appears really hard for her.
As for me, 33m with bouts of depression controlled by myself with techniques learnt over the years and the help of my kids who I adore and wife who supports me.
I feel guilty for writing, feel guilty for feeling so low because it's not me that's going through the worst of this. This coupled with something happening at work that is damaging to my mental health and it feels so much/too much (at times). I try to keep Mum smiling and laughing (I am a bit of a joker) but even that feels so hard to do, just because I feel low about it probably, not that there isn't anything to joke about. The quiet times are the worst, where I question "what she is doing now?" "How will this end?" "What will the end look like?" "Will she be in pain?" "What do the days after look like?" I'm not after answers, I doubt, I think maybe writing things down will help me deal with it, so I can help Mum deal with it.
Thanks for reading
Hi Culer32 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I'm sorry that your mum has oesophageal cancer and also lung cancer, although is the lung cancer a spread from her oesophageal cancer?
As you know, the online community is divided up into different support groups so I'm going to recommend that you also join and post in the oesophageal cancer group as this will give you the opportunity to connect directly with others who have this type of cancer.
If your mum's lung cancer is a secondary then there is also a secondary lung cancer group which you might want to take a look out. However, if your mum's lung cancer is a primary then the lung cancer group has lots of helpful people in it.
You might also like to join the family and friends group as this is a safe and supportive place to discuss your worries and emotions with others who have a loved one who is living with cancer.
To join any or all of these groups, just click on the links I've created which will take you directly there. You can then join and start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your mum's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
Hi Culer32, I'm sorry to hear about your mum's diagnosis of lung and oesophageal cancer.
I have depression myself (over 22years of it) so I do understand how it clouds so much of what we think and how we think and react. Plus you say you have a work issue going on too so you're really overloaded right now. Do have any form of talking therapy currently? Macmillan were offering six free sessions and there is I believe a support phone system where you get "buddied" up with a person who rings regularly.
You ask questions towards the end of your post but say you don't want answers, is that right or do you wish to be prepared? people often find it relieves their anxiety somewhat. So I will say that generally people become more frail and spend more time sleeping towards the end, however (and rarely) with some cancers there may be a risk of a sudden event due to a tumour being close to a blood vessel for example. A palliative care team plus your mum's GP can ensure there are emergency medications stored in the house for this eventuality. Please don't be frightened but instead be reassured that there are specialist people out there whose job it is to help your mum get prepared for things, ie; does she wish to stay at home or is there an option of a local hospice to go into when she needs more care?
Your mum should have a referral for palliative care from either her GP or a cancer specialist nurse in the oncology team who are caring for her, it's worth chasing that up if it's not happened yet as they will give your mum and her family support.
For now just take a day at a time my friend, spend time with your mum doing ordinary things such as looking at family photos, chatting, visiting with the grandchildren, trips out etc.
If you want to and feel you can then you can initiate more emotive conversations with your mum, to show feelings is to be human my friend so don't be afraid of them. Take care x
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