New to chemo

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I had my first chemo two weeks ago for breat cancer and it has been such a tough couple of weeks. I 've had various symptoms however they worst has been that it has left me unable to sleep and high anxiety. Has anyone else experienced this?

  • Hi and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read what a tough time you've had since having your first chemo two weeks ago. I had my first one yesterday and so far, touch wood, I'm feeling okay just a little tired.

    As the online community is divided up into different support groups I hope you don't mind me recommending that you join the breast cancer group which is a great place to ask questions, share experiences and get support from others with this type of cancer.

    Clicking on the link I've created will take you to the group where you can then join and post in the same way as you did here. You can also join in with existing conversations by clicking on 'reply'. 

    It would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Developed an adverse reaction to my Chemo drug Verdi, I have had Chemo for a few moths but I had developed a shaky left leg and left arm, it has  gotten worse as the  Chemo has gone on. They kept me in overnight then did an emergency MRI found a slight narrowing on neck where myeloma is is, but think Chemo drug Verdi is causing my diarrhea and shakyness in my left side . Still have some diarrhea and shakiness, not sure if it will stop.  Now cannot go out unless someone is with me. So adding more stress one family members.. I have to wait until they find a Chemo drug to help. Just wondered if anyone else has the same problem.

  • Hi  and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

    I'm sorry to read all the problems you've encountered since being on Verdi. 

    As you know, the online community is divided up into different support groups and I can see that you've already found and joined the myeloma group which is a great place to ask your question about chemotherapy, share experiences and get support from others with this type of cancer.

    Clicking on the link I've created will take you to the group where you can start a new post and join in with existing conversations by clicking on 'reply'. 

    It would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • First went to hospital in Ayrshire April 2021, having developed a shaky left arm after 2nd Covid jab, told me  it was carpal tunnel syndrome.  Sent home after 5 hours. Next day  could not use left arm hang useless, could grip back in hospital,  no idea got MRI after two weeks, lumber punch done. Told I had MS. Neurologist would be in touch sent home. Back at work, heard nothing, got in touch with my medical practice in October was told they would chase it up. Neurologist met me at hospital after my 3rd covid and flu jabs in December, again told it wasn't MS but would order another MRI, taken in February,  Neurologist contacted me beginning of March asked to come in to Queen Elizabeth University Hospital in Glasgow for a chat and Blood work. Told I had Multiple Myeloma, told I had go on sick leave. Next day whilst out shopping and putting petrol in the car,got a phone call to go to Crosshouse Hospital as my kidney function very low ask it I could drop off car and shopping and got a taxi in. Very slow but hectic diagnose, a year later, just had Stem cell collected hopefully getting transplant in the summer. So far I have had 3 mini strokes, no one knows why, heart condition,  covid once, and cancer for the rest of my life. But I am still here, fighting on. Who knows  what will happen next. 

  • Hi  

    It sounds like you've had a really tough time but I'm glad to hear that you're still "fighting on".

    I'm afraid I have no experience with myeloma, or the treatment of it, so you might be best posting in the myeloma group where you'll connect directly with others who have this type of cancer.

    Wishing you all the best

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hello Minton, yes immsomnia is one of the side effects, anxiety, perhaps due to the steroids youre receiving,