Hi all,
I have recently been diagnosed with a thyroid carcinoma in a struma ovarii. I have an appointment with oncology next week but have no idea what to expect and what kind of treatment I should expect. Does anyone have any knowledge or experience on this rare cancer type? This diagnosis followed the removal of a large ovarian cyst alongside my ovary and fallopian tube on one side, all scans and blood tests led me to believe it was benign so it came as quite a shock to find out it was not. I am finding it hard having little information on this and waiting for the appointment to come around so would find it comforting to hear others experiences. I am only 28 with no children, so I am definitely anxious about preserving my fertility.
Many thanks
Hi Nizzo and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
I don't have any experience with this type of cancer but have had a look in the different online groups and found a couple of previous posts which mention it in the thyroid cancer group.
To go to the group just click on the link I've created (green writing) and then join and start a new post in the same way as you did here. You can also join in with existing conversations by clicking on 'reply'.
When you have a minute it would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
