Neuropathy

Hi Helgz and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I know from being a Community Champion here for a number of years that neuropathy is something that affects a lot of people. I hope you don't mind me suggesting that you join the Diffuse large B-cell lymphoma group as it will give you the chance to connect directly with people who have had R-CHOP. If this is something that you'd like to do clicking on the link I've created will take you straight there where you can then join and post in the same way as you did here.

It would be great if you could pop something about your diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

Latch rook, thank you for your reply. I did find the page for B-cell at about 2am when I signed up. Just need to navigate my way around and I will fill out my profile. Thanks for your help xx

If you have any problems navigating the site I'd be pleased to try and help.

x

I developed neuropathy in my hands and my feet after receiving R-CHOP for lymphoma. 

The neuropathy in my hands went away, but the neuropathy in my feet has persisted and is unlikely to improve now.  At some point in the last 18 months I have become used to living with it and it rarely bothers me more than momentarily now.

Hello Lolie, I developed peripheral neuropathy from my chemo after bowel cancer way back in 2014. I was initially prescribed Amitryptiline for both my hands and feet. I stopped taking it not long after as it didn't seem to help. I still have it to this day, my hands aren't too bad but I feel as though I'm walking on sponges. I got  diagnosed with bladder cancer in 2020 and one of the treatments is with BCG which Is effective against the cancer but it can play havoc with your bladder. So ironically enough I'm back on Amitriptyline for that, I'm hoping it will be a double whammy and help my neuropathy as well.

I know that walking on sponges feeling well.

Do you take any medicine for it?

I do take amitriptyline but I'm not really sure to what extent it helps.

No I stopped mine after chemo back in 2014 for the same reason. Just hoping it will help with my bladder, only time will tell.