Hiya evening fellow warriors/survivors , I've been having problems with my hands since I started my chemo , The consultant said it'll take time but it could die down & go or be stuck with it as its nerve damage , Friday I couldn't take it anymore & called the gp for a prescription to be made out for neuropathy gel cream , The pharmacist called me today that 1 you don't get it on prescription & it looks like a homoeopathic cream , so it wouldn't interfere with meds already , she prescribed me Capsaicin , she thinks it should help me so I've to call her on Friday let her know how I got on with it , so here goes , got nothing to lose apart from the feelings in my fingers & hands and give me a break from the constant pain in my fingers & palms... Have a good evening peeps...
Hi again Gypsy rover Peripheral Neuropathy is truly a 'pain' 
I had it bad in my hands (and my feet also) for a few years, could not do buttons up, do my shoe laces, pick small things up...... the list goes on..... and my wife would not let me near sharp knives 
The only thing that worked for me was two hand sized rugby balls - think stress balls. I would sit with these in both hands most times watch the TV, reading a book.....
My Specialist Cancer Nurse said that it was all about getting the circulation going, working the nerves and muscles....... combine this with drinking a good 2 litres of water a day this helped flush out my system and keep my hydrated....... it worked for me.
Afternoon Mike , I was told by my gp to keep away from stress balls as you've only got the 2 actions he said start at 1 finger and work my way up & down wiggling them as that would get them moving me independently of each other working a bit not much , I got a cream from my chemist & I've had it on 3 times so far & it's made a wee change , but that was only yesterday , so here's hoping , drinking plenty but sore from my neck to my feet , if I'm out the next day I suffer , but I've heard 1 say , why you saying that you haven't got cancer anymore your cured , but she's forgotten the recovery j
ourney and as for a cancer nurse I haven't got 1 I'm alone in this with the Macmillan Cancer support phone line & Maggie's center , but need someone to sit with me and tell me my journey , what the dugs / chemo were , what it does to you physically & mentally , people see me & ask why you still on crutches , I need them , you look fine to me & I'm bursting inside. I called Macmillan line in Glasgow as I was asked by the Macmillan phone nurse , I did , her answer to me was your getting counseling or its starting , no more we can do for you , made me feeling times worse , sorry I've just given you a half load off as theirs more as its bottled up since September when I left hospital...
Medical professionals will all have there own opinion
Did not not arrange some 1 on 1 sessions at Maggie’s to talk your stuff through.
