Hi all
I started capecitabine two weeks ago and untill yesterday i was feeling OK. But then my feet started hurting and blistering and my hands are bright red and sore. I called the nurses and I have to stop treatment and wait to hear from them.
I knew this was a side effect but my god no one mentioned it was so debilitating! I have had cancer for 5 yrs and I have never felt like this. I think in the past I was just lucky I didn't get many side effects
Hopefully it won't be long before they get me another plan.
I hope you are all doing well on your treatment.
Sorry to hear about the challenges you are having with your treatment. I have been on my journey for coming up to 23 years and have experienced both ends of the spectrum with regards to side effects.
I have a rare skin blood cancer so over the years I have had lots of skin treatments and when the skin is effected it can be very very challenging....... One time I did end up with 2nd degree burns on my bum!!!!!!
Lets look for thing to improve for you soon ((hugs))
Hi again, I am doing great as I am now over 6 years out from my last treatment and 5 years into remission. It’s more amazing that until Sep 2016 I had only ever had remission that lasted 6-9 months before I had to go onto the next treatment.
Wishing you well.
