Hi dont know how to start but glad to see the start of a new year last year was life changing Jan 2021 had pain in stomach put it down to acid reflux new medication pain went away for a wee while .then April 2021 pain came back but was more painful nothing major but annoying so got sent to hospital for a appointment with doctor at QE this is were my life gets turned upside down and I dont know if its new year or new york from this examination I get sent for ct scan from the scan they find a large tumor in the soft tissue at the back of my stomach and its growing fast the pain was it crushing my bladder and bowel within 2 weeks I am took into the Royal infirmary and operated on as I was very ill but didn't know I was in theatre for 10hrs lost my bowel and have stoma now this tumor was the size of a baby and 2 weeks in icu I was told it was a aggressive form of cancer but they had removed it all so good news but there was a hole in my bladder as it had fused with tumor they were hoping this would repair itself but it hasn't so about 1 month ago was told I will be losing my bladder as it didn't heal so over the past 6 months its been a hard battle to recover but am getting there and here to tell my story but sometimes I dont know were to turn or goto feel lost and worthless I have always worked all my days and feel finished at 52 and now I have all these financial worry about pay bills and mortgage try not to speak about it to my partner she has been thro enough without me adding more stress onto her so I put on brave face and people ask you how are you ..am good getting there day by day...but under the face you put on am not good am not coping well with all this stuff its going on with my health and work just hoping to put on the right direction to get some help with my mental health
Hi and see it's your first post in the Online Community so welcome although I am so sorry to hear about the journey you have been on and the challenges you have been dealing with, this is such a hard time for you but I do hope you will find lots of support and comfort here on the Online Community.
I see that you have put up the same post to a few of our Experts, they will get back to you in a few working days.
As always the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via web chat. This service provides cancer information, emotional support, benefits and financial guidance or just a listening ear.
Talking to people face to face can indeed help a lot but during these strange times it’s not that available but do check to see if you have any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre in your area as these folks are amazing.
The Community has various support groups so you may want to have a look at our Bladder cancer and Stomach cancer groups. These are safe places to talk to others who may have a similar diagnosis or treatment experience.
If you'd like to connect in with a group, you need to join the group. First click on the Green link I have created above. Then once the page opens click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a ‘new post’ by clicking in the box near the top right with + New (Computers) or + (Mobile Devices). You will then see a dropdown menu so hit ‘Start a Discussion in New here, say hello’ and you are ready to go.
You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.
Always around if you need further help in navigating the community.
All the very best.
