Hi, I know that we are not on our own on this site. I have read through some very sad cases on the community chat forum and I’m hoping that we can benefit from other people who are going through this nightmare.
My wife was diagnosed with primary breast cancer 10 years ago. On the very day of her receiving her 5 year all clear, she developed secondary bone cancer. After a 14 hour life saving surgery, we have been lucky enough to have survived a further 5 years. I feel that we have been blessed to have been given this length of time.. Last August we were dealt a further blow that the disease had spread to her liver.. This has obviously devastated the whole family. We have had further radiotherapy sessions, CT scans, MRI & Bone scans. There has been a huge change to our lives as I’m sure everybody who has suffered from this dreadful disease. Chemotherapy, has resulted in weight loss, zero appetite and the current side effect is water retention. The water retention is a huge one for her to deal with at the moment. Please may I ask if anybody else has been through this side effect. It has resulted in her not being able to walk without me by her side as she has no control or strength because of the amount of water retention. Our oncologist has no answer to why this has developed to the extent that it has. It could possibly be to do with her liver function ? Has anybody else on the forum come across this kind of side effect ? If so, I would be so grateful if I could receive some positive feed back that might help us to deal with this situation we find ourselves in.
Thanks for reading my War & Peace experience and god bless everyone who might be going through this life changing nightmare xxxx
Hi and welcome to the online community
I'm sorry to read all that your wife and you have been through and it's totally natural to want to read some good news stories.
As the online community is divided up into different support groups I hope you don't mind me suggesting that you join and post in the secondary breast cancer group which is a great place to ask questions, share experiences and get support. Once you've joined look for the thread called 'positive secondary breast cancer stories' as hopefully that's just what you're looking for.
To join just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could pop something about your wife's diagnosis and treatment so far into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help
x
"Never regret a day in your life, good days give you happiness, bad days give you experience"
