Me & off days

Hi, sorry to hear about your tough year x Yes, I have bad days and days when I feel my friends don't get it x I am still in and out of hospital, again diagnosed late June x

Hi Els x , thanks for getting back to me , was at hospital yesterday and the consultant thinks im being to hard on myself , I should rest and take time for me & to think what my body has just been tough , even she said it was a tough intensive chemo I was on , some cycles cause of the megatrexate probably spelt that wrong I was sleep deprived 2.5 days I never slept for as I was peeing every 20ins , should've just stayed on the toilet , im glad that's all behind me my chemo journey was one I wouldn't repeat Xx

Honestly, one of my chemo causes me to be up peeing constantly and I do debate just staying in the bathroom honestly I think all of it is stressful!xx

You might have something there also , unless you have done the cancer journey , honestly don't think anyone can fully understand what stressful is , I was told I didn't have a sore back to be brought into hospital then told my sore back that I didn't have was cancer , shock didn't come into it , denial definitely did , but at least that explained the pain. Can I ask what part of you are with your treatment ? I finished chemo on September still on medication , apart from yesterday my appointment is 14th January with the consultant , hopefully my PET Scan will be done before my appointment Xx

Honestly it’s the constant changing it makes it scarier!

so I need to have 14 rounds of chemo 5 different types and one round is five days and another is 1, ive just had my 9th round and I’m also currently receiving proton beam therapy.

that’s the thing isn’t it once it’s done it’s not completely done and it’s not just the havung cancer it’s the side effects and fear that comes with it xx I hope the scans go okay they are one of the scariest things for me x

My 2nd week that's when I lost my hair as the chemo was so intense ,  Funny NOT how they don't tell you that along with side effects or after effects from the chemo , we're left to find that out. At the minute I'm sore & still fro my neck to my feet , started 3 weeks ago Xx

yeah same as me it’s so intense the hair comes out so fast and mine was so long

bless you! I hope it gets easier, I can imagine it takes the body so long to recover doesn’t it I bet it’s painful x

Thank you so much for taking the time to talk to me , it's nice talking to someone who's been through the same & has the same understanding of what we're going through Xx

Anytime, thank you as well xx