I had breast cancer back in 2006, had a lumpectomy followed by chemo and radiotherapy. Went to my GP September 21 because I had a strange lump on my upper chest/sternum. She sent me for a routine ultra sound. Phoned in October because it felt bigger and I was getting short of breath. Had ultra sound 1 November. GP phoned 2 November and said that they didn't know what it was. Since then I've been sent to Breast care clinic, had mammogram, ultra sound and two biopsies. I was then sent for a CT scan. Results are that the cancer is back in my left breast, hip, spine, liver and lungs. I'm struggling to walk. Was sent to hospital to the fracture clinic. Long walk to the clinic and then given a bit of paper to be sent back the way I came for another xray. Struggled to the xray department, sat there waiting and waiting getting more upset and angry, hip was throbbing. I just left, was crying walking along the endless corridors. Then went to a appointment with the oncologist, this was when I was told that cancer was in my spine. I just lost it and walked out crying with a nurse chasing after me. This is totally out of character for me.
Put on medication and had a appointment yesterday for the xrays that I missed. Got to the fracture clinic where I had been previously told there was be a wheelchair to take me down to xray. Nothing, so I asked and got a chair (eventually), had xray and wheeled all the way back to fracture clinic. Saw another consultant who said my hip was a great risk of fracturing and had a tumour on it, would need a replacement hip. Wanted me to go into hospital the next day. I said no I'm a full time carer for my Mum who lives with me, so need to give social services some notice.
I've spent all day on the phone trying to get through to Social Services, who are now suppose to be phoning me back. Then phoned Patient Transport for next Tuesday, they need to know what time I need to be at hospital and which ward, which has not been told to me. They need to know by tomorrow morning. Then phoned to central switchboard which kept on sending me to different departments and voicemail messages. Still havn't found out the information which I should have been told in the first place. Its feeling like a pointless exercise and I'm so tired.
Hi Gezzelin,
So sorry no one has replied so far - can make your experience seems even lonelier. Your story is horrendous and no one shuuld be messed around like this. I hope you got the answers and will be able to make it to the right place for your hip replacement. No wonder you were feeling so tired and hopeless before - I hope that has lifted somewhat. When you are ready, maybe join us on the Incurables group as we are an active and supportive forum which not all are.
Best wishes
Another morning spent on the phone. Managed to eventually speak to someone who told me that they want me there on Monday not Tuesday. I said I'm not leaving a 85 yr old ( Mum)with vascular dementia on her own. Agreed to get there Monday afternoon. Phoned Social services, who said that they couldn't bring the carers in until Tuesday, so my sister is having to come over and see to her. Patient Transport where abit snotty about the short notice, so I said would you like to phone social services on my behalf and organise them at such short notice which shut them up. I'm paying someone to come in twice a day to look after dog/cat and my sister, who use to be in that line of work has made a care plan up for the carers and will be "dropping" in to check.
hi Gezzelin, I don't know you but just want to reach out to you. It sounds like the right hand doesn't know what the left hand is doing. To treat you this way is outrageous and must be exhausting. Your anxiety must be sky high. You've got a lot on your plate. You've done all you can. It's awful when it's not in your power or control to do something. There's no magic wand and I so wish there were .
Kath
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