First off this is my first post. I was diagnosed with stage 4 cancer; colon cancer and tumour in my liver. I live on my own with no family.
My problem is with Pennine trust and the way I’ve been treated.
ive had appointments cancelled when I am in the waiting room. I was sent a appointment for my pre op at one hospital only to be told it was for another hospital. The last straw and the reason why I am writing today was I have been bleeding a lot from my bottom and had to go to A&E I called an ambulance and it took 2 and half hours; I waited a further 5 hours in a cold corridor waiting to be seen. I am so upset by the experience I have decided not to get anything treated.
I am dealing with schizophrenia as well as depression and it takes a lot for me to go to appointments. I have to have someone with me. I was wondering if anyone else has decided to walk away from treatment and how did you feel when you do?
I apologise for the long post but I have a lot to say.
Hi and welcome to the Online Community but so sorry to hear about the challenges you have been facing. Unfortunately these problems happen a lot and even more so during these rather add times.
I have went to an appointment 9hr round trip drive to find that the clinic was closed as it was a local holiday, sown hours on a bed in a corridor with an IV connected pumping antibiotics as I had Pneumonia and Neutropenic Sepsis but none of this robbed me from my desire for life.
The Community has many dedicated support groups so can I recommend you start by joining our Vulva cancer group. This is a safe place to talk to other people who might have a similar diagnosis or treatment experience.
If you'd like to connect into this group, you need to join the group. First click on the Green link I have created above. Then click on the black banner that says [click to join] at the bottom, or the [Join] button under "Group tools."
You can then introduce yourself by putting up a new post by clicking in the box near the top right with + New (Computers) or + (Mobile Devices). You will then see a dropdown menu so why not hit ‘Start a Discussion in New here, say hello’
You could copy and paste the text from this your first post. You can also search through existing ‘Discussions’ and click [reply] if you want to put up a comment.
It’s always good to talk so do call the Macmillan Support Services on 0808 808 00 00 - most services are open 8am to 8pm, 7 days a week Clicking here to see what is available. This service provides lots of cancer information, emotional support, benefit and financial guidance or just a listening ear.
Talking to people face to face can indeed help a lot but during these strange times it’s not that available but do check to see if you have any Local Macmillan Support in your area has opened up. Do also check out for a local Maggie's Centre
Always around if you need further help in navigating the community.
All the very best.
