So 6 weeks ago my dad had a shock diagnosis (which was treated initially as acid reflux) of advance lung cancer which has spread to the liver and spine confirmed after MRI scan. The hospital can not find the primary cause and there has not been any staging and grading that I hear of that is necessary with a cancer patient. I feel the hospital have simply washed there hands of him! He has never smoked and always been very active and healthy. He is 74 yrs old.
The hospital care he has received has been patchy to say the least and communication shocking. To me it seems he has been sent home to die with only oral morphine. My mother is currently caring for him and he is basically bed bound now as naturally very fatigued now. My mother has been given the telephone number of a local hospice if she needs advice and was told a nurse would RING once a week!! But surely as things draw to the end there should be more support in place?!
Should there not be a named Macmillan nurse for him or any kind of care support for my mother?
What is the usual/standard procedure of care in this scenario?
Hi, I’m sorry to hear of your dads diagnosis, I am going through this awful journey with my dear dad too. In April my dad was diagnosed with oesophageal cancer, metastasised to liver and lymph nodes. My dad is 85 and also suffering with early stages of dementia, we spoke to gastrointestinal surgeon who advised any treatment would only be palliative and because of his recent frailty he may not tolerate the side effects of chemotherapy. I too was concerned that they hadn’t given me a staging and was just discharged into the care of the palliative team.
A short time after appointment the local hospice visited and discussed care options, they advised as and when was needed we could get NHS funding for continuing care, this started when he became to weak to wash himself (3 months ago). They have also being a reassuring support, I can call them with any concerns. Dad started to go down hill and the GP visited and have advised he is in the final stages now and referred us to the community nurses (District Nurses) who arranged a hospital bed and other medical aids, they too are available as and when needed. The GP arranged ‘just in case’ medication, which I have now, just in case he is in any pain or discomfort they will come out and administer these drugs. The hospice nurses are also still in contact and I now feel reassured that Dad & has the support that he deserves. I think you should get in touch with the GP, they have a duty of care to come and visit your Dad and make sure he has the correct support.
I wish you all the best, during this awful, heart wrenching time.
Hello, Firstly I wish to thank you for taking the time to reply. I'm so sorry to hear of your dad's diagnosis. I appreciate you sharing your journey thus far as it's given me an insight into reaching out to the help he needs and in which areas to pursue. I am relieved to hear of your reassurance and support and hope this continues for you.
You are more than welcome, are you any further forward with support? I’m here if you need any advice or just someone to talk things through.
I should have also said if your dad is having difficulties eating or with appetite then Dads GP prescribed Ensure nutritional drinks, they do various flavours and my dad finds these quite palatable.
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