Hi there,
I was recently diagnosed with AML early this year and after the first two induction chemotherapy sessions my bone marrow biopsy results showed zero traces of the disease! I have completed my third round of chemo and are waiting on, what I believe is my last chemo (hopefully).
what is worrying me through is the FLT3 mutation! I was searching information on the drug I am taking for it and I didn’t like what I saw! According to google people with FLT3 mutations have very poor outcomes. But what confuses me is my medical team and specialists still tell me that my cancer is curable and can be beaten and that’s all I need to remember!
I was wondering if anyone has been or is in a similar situation to me and could possibly have some advice for me at this stage of my cancer journey!
I am obviously extremely happy I am in remission but can not get the idea of my cancer relapsing out of my head! Especially with the FLT3 mutation!
thanks.
Hi
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
Hi . Sorry my message was posted too early! I've just noticed you've also posted in the AML group and received some replies so I think that's where you're likely to get relevant replies. You could always go back to your Oncologist and ask for clarification about the FLT3 mutation.
Really good news to hear that you're in remission!
Sending all the best, B x
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
