Chemotherapy stopped

FormerMember
FormerMember
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Hello, diagnosed with breast Ca with lymph involvement. Mastectomy axillary clearance done. Due to lymph involvement chemotherapy recommended. I’ve had quite a few life threatening experiences starting chemotherapy. First time on EC I ended up with neutropenic sepsis and perforation of bowel. Treatment then delayed due to me recovering. Second cycle changed to Pacitaxal, went into anaphylactic shock, 3 cycle palpitations and chest tightness, 4th cycle same heart problem, oncologist suspect Prinzmetal Angina now waiting cardiology assessment. Oncologist recommended treatment stop and continue with radiotherapy, Letrozole and ibandronic Acid. I am at risk of relapse because of lymph involvement I’m now greater risk as chemotherapy now abandoned as allergic to it. Had anybody else’s experienced this ? how are you coping? And how do you manage the anxiety of worrying about not completely chemotherapy and relapse. I just want to have peace i my head again without having to die for it. Will these feelings get better ?  

  • Hi and a very warm welcome to the online community

    I'm sorry to hear all you've been going through since you've been diagnosed with breast cancer.

    As you know the online community is divided up into different support groups so I'm going to recommend that you join the breast cancer group which is a great place to ask questions, share experiences and get support and I'm sure you'll find others there who haven't been able to complete their chemotherapy.

    To join just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then introduce yourself and post in the same way as you did here and join in with existing conversations by clicking on 'reply'. To save you typing this all out again just copy and paste it into a new post.

    It would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when answering or looking for someone with a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

    If you have any difficulty navigating the community just drop me a reply and I'll be pleased to help.

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to latchbrook

    Hi there Latchbrook. Thank you so very much for your help. I’ve updated my profile and joined the Brest cancer group. IT is not my best skill. I will add my question on that group. I’m looking for reassurance, it’s so difficult when I know I’m at risk of relapse and not to finish chemotherapy puts me at a greater risk. It’s difficult to get my head round. Mentally this is eating me up. A light has gone out in me and I’m not sure if it will ever get reignited. 
    Thank you for your help. 

  • I think we all recognise those feelings of worry but I'm sure you'll find lots of people who have been unable to complete all of their treatment in the breast cancer group to chat to.

    You say that this is affecting you mentally so I wondered if you'd spoken to your GP or BCNS about how you feel? You might like to take a look at this information from Macmillan on getting help with your emotions.

    x

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • FormerMember
    FormerMember in reply to latchbrook

    Hello Latchbrook. Yes both of them are aware. Having  CBT currently, which tbh is not effective in terms of my mental state. So been referred to counsellor. Appointment next week. Not sure if that will help, as nobody can tell you everything is going to be ok, not even my oncologist. Reassurance is good though from people who have been through it. I don’t think that people really understand how we feel, i mean really feel when you’ve been diagnosed with this wicked disease, as good as it is to have their support and experience it’s not the same taking someone whose going through it and been through it. Thank you for your advice xx