Hi everyone. Haven't been on for some time and just want to chat about my experiences.
In 2018, I was diagnosed with CNS Lymphoma. I had 4 rounds of chemotherapy and a stem cell transplant between my local hospital and UCLH. Me being me I ended up being very ill and spent 3.5 weeks in Critical Care at the end of 2018, beginning of 2019. I was eventually well enough to be transferred from UCLH to my local hospital and then home. 2019 continued fairly well. I was seeing various health professionals and even went to my local hospice one day a week, which I thouroughly enjoyed
I've now regressed unfortunately and am having to have numerous tests. I am in remission. I have had a rash on the right side of my face for over a year which I am seeing a dermatologist for. No one seems to know what it is! Also pains in my legs which I am booked in for x rays this week, with a possible lumbar puncture looming. I have various other problems but I find it hard to talk to anyone about it, because I am in remission.
I'm sorry for rambling and hope this is ok to post. I just want someone to talk to.
Hi again , I am sure that some folks will be along to have a chat.
I am so sorry to hear about the challenges you are facing and let’s look for some positive progress to be found…. as always the folks in the Stem cell transplant group are also around to chat ((hugs))
