I have been having various tests for the last 3 months to try and determine if a tumour on my spine was benign (notochord) or cancerous (chordoma).
Yesterday the specialist said that they have run out of tests and can't confirm it one way or the other but the sarcoma team all think that its most likely Chordoma and they want to treat it as such.
I'm slowly accepting the diagnosis and starting to plan for the surgery and radio that will come. But I'm having problems saying the words "I have cancer". I feel like a fraud. All the experts think it is and the treatment, side affects, prognosis etc is all the same regardless. But as they haven't proved it 100%, I feel like I'm faking it telling people.
Any other cancer sufferers out there who can reassure me that me saying I have cancer when it's not totally confirmed isn't insulting to you and everyone else who is affected by cancer? Is this a rational thing to be stressing over when I'm facing such a major surgery?
Hi PippityPip
You have absolutely no chance of offending anyone - you are facing major surgery and they are treating it as cancerous- so no apologies required to anyone. Maybe worrying about this is a distraction from other worrying? If you tell people you have cancer, you can celebrate that it isnt if it turns out to be benign, but if it is cancerous that you have already told people Fingers crossed it is notochord.
x
Thanks OwnedByStaffies. That's good to hear. x
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