Going reluctantly for a record

FormerMember over 4 years ago

4 replies
12 subscribers
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Diagnosed with rheumatoid arthritis six years ago. 28th August Diagnosed with lymphoma. I had 2 rounds of Rchop then good news over 50 percent shrunk. But then the rest of the news. It's. Not worked on lung lesion biopsy on right lung on the 16th December, that will be something to look forward to results Christmas week. Same in left thyroid no biopsy booked for that one yet. Something to look forward to for next year. Oh and I have moderate emphysema. Chemo has been stopped while they do what they have to do third chemo missed now!! So scared the lymphoma spreads as the weeks go buy. Haemotology not returning simple request to have perscription renewed for antibiotics. Sorry if it seems I am moaning, I am infact goi down and losing my optimistic outlook

FormerMember over 4 years ago

Im sorry to hear your news and not suprised your struggling to keep positive . You have so much going on ! The only thing I can suggest is it helps me to not think of everything all together but to break it up into chunks if that makes sense? So firstly youve had good news that you had 50%shrinkage . Not the best but deffinitley not the worse. Ive also learnt thers no point worrying over things you have no control over the inregards to the lymphoma spreading .All you can do is take each day as it comes and try and fill it with things that bring you pleasure or peace , so that thers less time to worry about the other stuff. Take each step as it comes and try not to think of too far ahead as all anyone has is today I hope this helps you feel alittle more in control and I wish you all the best with your recovery .Xx

Lolie over 4 years ago

Your story seems similar to mine. I was diagnosed with lymphoma in December 2019. PET in January showed a mass on my left lung, as well.

I completed R-CHOP in June this year. Everything but the lung mass had resolved so I was referred to lung specialists. A biopsy at the start of September confirmed that my lung mass was primary adenocarcinoma. Fortunately it was both low grade and early stage, so I had a choice between surgery and SBRT. I chose SBRT because I was concerned about putting my compromised immune system through surgery. The first follow up scan on my lung showed a reduction in mass size.

Having synchronous cancers is tough, but it's not as uncommon as people believe. It's hard for patients to find solid ground because everything seems so fragmented. Am I a haematology patient today or am I a lung cancer patient?

I don't have a lot of answers but mostly wanted to let you know that you're not alone in your experience.