Hi I joined today as I was diagnosed with bladder cancer 2 days ago, I have tried to find posts here from the sufferers but only found their partners, I am hoping to see other suffers experiences good and bad so as I can compare so I will start off, I am 69 year old male very fit and well for my age, have had tests for uti a few times in past 2 years, all tests for uti and prostate cancer negative but continued to get symptoms ie hot pains when passing water, 6 weeks ago I had passed blood cola coloured, I had 2 more bleeds since, I called 111 who arranged Docs apps, had camera inspection cancer found, looks big but hard to tel, am in little pain only am going for op to remove cancer in December and will be told more about Xmas time, anyone out there got anything to add?
Hi and a very warm welcome to the online community
I'm very sorry to read that you've just been diagnosed with bladder cancer. I know what a difficult time this will be for you and your family.
I hope you don't mind me suggesting that you join the bladder cancer group where you'll find lots of people who have this type of cancer. To join just click on the link I've created and then choose 'click to join' or 'join' (depending on the device you're using) on the page that opens. You can then copy and paste your introduction from here into a new post there.
When you have a minute, it would be really useful if you could pop something about your journey so far into your profile as it really helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
x
Hello Hoxton,
You have to the right place to find people in the same boat as you now find yourself in, feel free to ask any question you may have regarding your diagnosis.
Ten years ago now i was diagnosed with bladder cancer, luckily i caught it early i was 56 at the time, i can remember the worry and anxiety i had before going for the op to have it removed, but all my worries weresomewhat unfounded, for me i chose to be awake during the op (via Epidural) it was totally painless and nothing to be concerned about, the following days i think only 80 hours or so actually in hospital, internal chemo, (Mitomicine), the most uncomfortable thing was simply taking a pee afterwards and having to drink so much water in a short space of time to fecilitate the required amount before being discharged.
One word of advice is that for a few days before the op make sure you drink more water each day than you would normally, so you are fully hydrated as it helps and speeds recovery, and take note and follow any instructions you may be given by the team, however as there are many variations of this nasty Cancer, not everyones treatment is the same depending what type and grade you have, which you will know more about later.
Here i am 10 years later, now semi retired, still fully functional and with no re occurence of bladder Cancer, but next week having an op for skin cancer on my Face & Back !
If i can be of any help to you with further questions/answers you may have, then please get in touch anytime.
Regards
Pauli
Hello Hoxton,
You have to the right place to find people in the same boat as you now find yourself in, feel free to ask any question you may have regarding your diagnosis.
Ten years ago now i was diagnosed with bladder cancer, luckily i caught it early i was 56 at the time, i can remember the worry and anxiety i had before going for the op to have it removed, but all my worries weresomewhat unfounded, for me i chose to be awake during the op (via Epidural) it was totally painless and nothing to be concerned about, the following days i think only 80 hours or so actually in hospital, internal chemo, (Mitomicine), the most uncomfortable thing was simply taking a pee afterwards and having to drink so much water in a short space of time to fecilitate the required amount before being discharged.
One word of advice is that for a few days before the op make sure you drink more water each day than you would normally, so you are fully hydrated as it helps and speeds recovery, and take note and follow any instructions you may be given by the team, however as there are many variations of this nasty Cancer, not everyones treatment is the same depending what type and grade you have, which you will know more about later.
Here i am 10 years later, now semi retired, still fully functional and with no re occurence of bladder Cancer, but next week having an op for skin cancer on my Face & Back !
If i can be of any help to you with further questions/answers you may have, then please get in touch anytime.
Regards
Pauli
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007