Corona virus

FormerMember
FormerMember
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Hi 

I am currently in remission for lymphoma. I read the guidelines about staying at home for 12 weeks and it says anyone having treatment at any stage, does this include people in remission?

  • Hi  yes, this is all very confusing and I would always recommend talking with your team (if you can) as every blood cancer case is individual and the following information may well be out of date, but from your information you may well be in a high at risk category.

    This Information from the government is all encompassing and is a good guide what to look out for and what you should or should not do and Macmillan have also provided some information and answered some key questions around cancer and coronavirus (COVID-19). This link takes you to the most up to date Bloodwise information about the Coronavirus.

    This is also on the Government information "If you're at high risk, you will be contacted by the NHS by Sunday 29 March 2020. Do not contact your GP or healthcare team at this stage – wait to be contacted."

    I was diagnosed in 1999 with a rare type of Skin NHL. I am now over 4 1/2 years post my last treatment and in remission. Just a few weeks back my team said   “……you need to think that you have just come through all your treatment again and take exactly the same precautions as you did then........”   so I am basically back into a three+ months isolation controlling everyone I come in contract with and where and what I do.

    She also said ”……. once a blood cancer patient always a blood cancer patient"......... "All the treatment you have had has indeed had a long lasting effect on the effectiveness of your immune system even although your bloods are ok with a few at the lower limit range of acceptable, like any virus you are at risk but this one we don’t know how a post treatment patient will react - let’s be safe and not sorry”

    Not much help for you - sorry..... but this virus can not be underestimated.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • FormerMember
    FormerMember in reply to Thehighlander

    Hi, 

    thank you so much for your reply! This is what I thought, it’s just tough waiting for confirmation of this. It’s difficult to know what to do until I receive a letter (if I do) as I’m still at work at the moment but obviously I may not get a letter till the end of the week, which obviously is another week that I could be potential putting myself at risk, it’s very tough! 

  • The thing is, a lot of folks may not even get a letter. I am not expecting one but my team did emphasise that there is a big unknown area in all this so I am digging in for the long game.

    Stay safe.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • FormerMember
    FormerMember in reply to Thehighlander

    Ok thank you for your help!