Help? Inflammatory Breast Cancer

FormerMember
FormerMember
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Hi,

I am 25 years old, I have three children age 6, 3 and 8 months. I’m breast feeding my youngest. One day when I was feeding her I noticed a rash on my left breast. It isn’t raised or itchy and up close it looks like lots of little pinky purple veins. There are no other symptoms it literally just looks different because of this pinky purple veiny ‘rash’

I went to the doctors and the doctor felt and said there was no lump, that my boobs both look pretty similar and no funny shape to them and made me lift my arms etc. with me breast feeding she assumed it might be Mastitis but said it isn’t too bad as I haven’t started to feel unwell with it and should go away on its own and to comeback in a week if it hasn’t gone. This was the 2nd nearly 3rd week of it being there at this point 

So a week later it still hadn’t gone. I saw a different doctor, she had a look, said as there isn’t a lump she isn’t worried and then gave me antibiotics for mastitis and told me to come back in a week if it hadn’t gone.

Another week later and it still hadn’t gone, I saw her again and she said that she was referring me to the breast clinic and that we need answers. She said she wasn’t worried with their being no lump but I know Inflammatory Breast Cancer doesn’t always have a lump. It’s 6/7 weeks now and still no sign of it going.

I have an appointment on the 18th of this month. Does anybody have any experience of this. I think it’s cancer and I’m terrified.

  • Hi  and welcome to the online community

    Worrying that you have cancer is a perfectly normal reaction when you've been referred.

    Could I suggest that you join a couple of groups on this site so that you can share experiences with others. The first is the inflammatory breast cancer group and the other is the main breast cancer group. The second group is the busier of the two and you are more likely to get a reply from the people there.

    To join either or both of these groups just click on the links I've created and then choose 'join this group' on the pages that open. You can then post a question or introduce yourself after selecting 'start a discussion' and respond to existing posts by clicking on 'reply'. 

    When you have a minute it would be really useful if could pop something about your journey so far into your profile as it helps others when answering or looking for someone with a similar diagnosis. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Edit Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

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