Hello
I’ve been diagnosed with cancer this week in my breast and lymph nodes, and I’m having an MRI tomorrow to investigate my liver as something looked a bit suspicious on my CT scan.
I’m really terrified as the lump in my breast is huge (5cm x 6cm) and if it’s already in the lymph nodes and possibly liver then I’m really worried the chemo won’t work.
I also don’t know the classification of the cancer yet so I’m panicking that it will be triple negative and really aggressive (it’s grown really quickly and has affected the skin of my breast / nipple) I asked my consultant whether it could be inflammatory BC and he said possibly, as while the breast is not red or inflamed, the skin appearance could allude to this.
My treatment will be chemo followed by mastectomy - I’m fine with both of these, just really anxious about what will happen if they don’t work.
I’m a 33 year old single parent with a 9 year old son. I don’t know what to do.
Some fab advice in all your posts Dom and I tackled mine in the same way. My breast care nurse even said that she felt I was tackling it like a project with a notebook full of questions; risks and issues discussions and each appointment/ treatment treated like a milestone to achieve.
I found it really beneficial to break things down into bite sized chunks like this and I’m sure it helped me to get through one step at a time.
Good luck on your journey and best wishes to Jen too. X
Amazing advice DaisyDoo and huge amounts of good luck with your fight. Love the positive attitude.
Cancer is tough but we’re tougher! Xx
Hi
I had my CT scan to see if it's the spread on 4th may and get the results 9 may ( I am scared) but I know on Friday I will wake up and face whatever is thrown at me. I have my oncologist appointment 14 may so can only assume I will start chemo soon as I have grade 3 and HER2 positive.. I need a picc line so guess it's done same day...I just worry each day I wait things could get worse..so I brought a recipe book with cancer fighting recipes ..I struggle with nausea ( take high doses of morphine) but the pictures look nice and its all super healthy... I just hope my oncologist allows my chemo not to clash with my wedding date.. I am usually really strong but yesterday I cried because I thought if chemo did clash with wedding how will I manage let alone enjoy it...this thing we have is cruel..but I will fight...I just hate not having control...if any has any tips on dealing with the random panic attacks or the fear of results I would love to learn..as I said I'm usually calm / laughing trying to carry on but suddenly it hits you!!!Kind regards flamingo 13
Once you have a plan Flamingo it will be easier. That initial wait is just the pits. They will do everything they can to make sure you are the best you can be for your wedding but once your chemo has started you will have a better idea how you feel on chemo.
I find I just go with it. For me things seem to change on a regular basis so just take it on the chin and think I have to go through all this to find the thing that works.
Keep that chin up and try to find something good in every day. A pretty flower, a funny cloud. Xx
Hi daisydoo38
Thank you for your message...I went to work on my day off today for a positive distraction! I know that Friday I will face whatever and fight...but in 20 minutes it's the 9 may - results of body sca..and I have not worked out how I will deal with this! I agree chemo will bring challenges and until I start I won't know how it will effect me. My BC nurse has said from day 1 that our wedding wille accommodated..but once I got told I had to have chemo before 2 nd surgery and the body scan I wonder if they will allow an extra week ...it looks like I will get 2 chemo before wedding ...my poor ughter is not able to speak about any on the things happening to me...she won't even text me which makes me sad..she is only 19 and away at uni ...I am lucky that 95% of my day is that of laughter and normality but when that 5% of petrified/ scared thoughts overcome you it's not fun is it...that's the things I struggle with as I am such a happy confident person in control and now I have zero control!! This site has been so helpful and made me feel less alone! I apologize for the random smiley faces but they seem to appear when I reply from my phone...we tomorrow is nearly here but I guess once it's over I can get on with whatever I'm told. I just hope nothing delays the chemo it's so frustrating!!
Big hugs and thank you
Flamingo 13 xx
Hi Amy
Yes - the Mummy’s Lump book that was kindly shared with me is really good for younger children - I would definitely recommend
Rachel x
Hi, just wanted to send you both a hug and wondered how you are getting on xx
Hi Daisydoo38
I had my body scan results on 9 may it's contained and not spread further which is good news...but you need to have surgery in 5 months time..... then I saw oncologist yesterday I need to have a central line portacath as I'm going to need 14 months of chemo. I also have 2 lots of cording in my arm and possible lymphedema so not best 2 days I know it's going to be a challenge journey but someday I hope just for good news...
How are you at the moment
Flamingo13 x
I know it is a lot to take on in one go but I'm sure you will tackle it all head on. It is great news about the scan. Just continue to take it all one day at a time xxx
I've had my first cycle of Eribulin. Feeling ok although getting quite tired and radiotherapy starting soon too. Surgeons won't touch me - although there are times I wish they would just chop them off. Would just be nice for something to work for more than 3m!
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